Rattani Salma A, Dahlke Sherry, Cameron Brenda
Aga Khan University, Faculty of Nursing, School of Nursing and Midwifery, Karachi, Pakistan.
University of Alberta, Edmonton, Canada.
Glob Qual Nurs Res. 2022 Feb 25;9:23333936221080988. doi: 10.1177/23333936221080988. eCollection 2022 Jan-Dec.
In this descriptive case study, we aimed to understand the experiences of cancer diagnosis, treatment, and palliative care in Pakistan. The case was limited to a hospital for cancer and hospice care in Karachi, Pakistan. Data collection included interviews with patients who had a cancer diagnosis, family members, healthcare providers, and unstructured observations. Two themes of suffering and late diagnosis were developed to describe the experiences of people with cancer. Suffering occurred as a result of poverty, social ideas about cancer, and physical suffering. Late diagnosis happened because of cultural ideas about health, low health literacy, and healthcare challenges, although both themes are interconnected. The findings illuminate three key pathways that will improve cancer diagnosis and palliative care in Pakistan: specifically, the need to (a) educate healthcare providers about cancer and palliative care, (b) eradicate corruption in healthcare, and (c) develop policies for universal access to health.
在这个描述性案例研究中,我们旨在了解巴基斯坦癌症诊断、治疗和姑息治疗的情况。该案例仅限于巴基斯坦卡拉奇的一家癌症与临终关怀医院。数据收集包括对癌症确诊患者、家庭成员、医疗服务提供者的访谈以及非结构化观察。我们总结出了“痛苦”和“诊断延迟”两个主题来描述癌症患者的经历。痛苦源于贫困、关于癌症的社会观念以及身体上的痛苦。诊断延迟则是由于关于健康的文化观念、健康素养低下以及医疗保健方面的挑战,尽管这两个主题相互关联。研究结果阐明了改善巴基斯坦癌症诊断和姑息治疗的三条关键途径:具体而言,需要(a)对医疗服务提供者进行癌症和姑息治疗方面的教育,(b)根除医疗保健领域的腐败现象,以及(c)制定全民享有医疗保健的政策。