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Occurrence rates of inherited bleeding disorders other than haemophilia and von Willebrand disease among people receiving care in specialized treatment centres in the United States.

作者信息

Miller Connie H, Soucie J Michael, Byams Vanessa R, Payne Amanda B, Abe Karon, Lewandowska Magdalena, Shapiro Amy D

机构信息

Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.

Synergy America, Inc., Duluth, Georgia, USA.

出版信息

Haemophilia. 2022 May;28(3):e75-e78. doi: 10.1111/hae.14529. Epub 2022 Mar 4.

DOI:10.1111/hae.14529
PMID:35245405
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9443540/
Abstract
摘要

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Occurrence rates of inherited bleeding disorders other than haemophilia and von Willebrand disease among people receiving care in specialized treatment centres in the United States.在美国专门治疗中心接受治疗的人群中，除血友病和血管性血友病之外的遗传性出血性疾病的发生率。
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Recommendations on choice of therapeutic products for the treatment of patients with haemophilia A, haemophilia B and von Willebrand's disease. UK Regional Haemophilia Centre Directors Committee.关于治疗甲型血友病、乙型血友病和血管性血友病患者的治疗产品选择建议。英国地区血友病中心主任委员会。
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Haemophilia. 2021 Nov;27(6):1037-1044. doi: 10.1111/hae.14403. Epub 2021 Sep 4.
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[Hemophilia and other inherited blood coagulation disorders in Poland].[波兰的血友病及其他遗传性血液凝固障碍]
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A three-year study of adolescent boys suffering from haemophilia and allied disorders.一项针对患有血友病及相关疾病的青春期男孩的为期三年的研究。
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The role of public health in rare diseases: hemophilia as an example.公共卫生在罕见病中的作用：以血友病为例。
Front Public Health. 2025 Mar 20;13:1450625. doi: 10.3389/fpubh.2025.1450625. eCollection 2025.
2
Racial and ethnic differences in reported haemophilia death rates in the United States.美国报告的血友病死亡率中的种族和民族差异。
Haemophilia. 2023 Nov;29(6):1410-1418. doi: 10.1111/hae.14859. Epub 2023 Sep 17.
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Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs.妇女和女童出血性疾病：科学现状和疾病预防控制中心合作项目。
J Womens Health (Larchmt). 2022 Mar;31(3):301-309. doi: 10.1089/jwh.2022.0008.

本文引用的文献

1
Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States.在美国专门的血友病治疗中心接受治疗的患血友病的妇女和女孩。
Haemophilia. 2021 Nov;27(6):1037-1044. doi: 10.1111/hae.14403. Epub 2021 Sep 4.
2
Occurrence rates of von Willebrand disease among people receiving care in specialized treatment centres in the United States.美国专业治疗中心接受治疗人群中血管性血友病的发生率。
Haemophilia. 2021 May;27(3):445-453. doi: 10.1111/hae.14263. Epub 2021 Mar 29.
3
Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres.根据在美国专门的血友病治疗中心进行的监测，美国男性血友病的发生率。
Haemophilia. 2020 May;26(3):487-493. doi: 10.1111/hae.13998. Epub 2020 Apr 24.
4
Community counts: Evolution of a national surveillance system for bleeding disorders.社区计数：出血性疾病国家监测系统的演变
Am J Hematol. 2018 Jun;93(6):E137-E140. doi: 10.1002/ajh.25076. Epub 2018 Apr 28.