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ASD 诊断与治疗:墨西哥裔美国家庭的经验

ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families.

机构信息

Department of Education Studies, University of California, 9500 Gilman Drive #0070, San Diego, CA, 92093, USA.

出版信息

J Autism Dev Disord. 2023 Mar;53(3):1017-1033. doi: 10.1007/s10803-022-05512-3. Epub 2022 Mar 19.

Abstract

To understand the ASD diagnosis and treatment pathways for US families, N = 38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers identified multiple diagnosis circumstances including two diagnoses and services offered before diagnosis. A multiple case study design documented the diagnosis and treatment experiences of four representative participants. As compared to previous studies that utilized a deficit lens to rationalize barriers to diagnosis and treatment (e.g., parents not knowledgeable about ASD), these findings revealed a complex understanding of how structural barriers (e.g., immigration status), initial diagnosis rejection among caregivers, and abrupt service cancellation complicated the diagnosis and treatment process. Implications identified suggestions to optimize and streamline ASD diagnosis and treatment pathways for Mexican heritage families.

摘要

为了了解美国家庭的 ASD 诊断和治疗途径,我们对 38 名墨西哥裔母亲进行了采访,了解她们是如何以及何时为孩子做出 ASD 诊断的。大多数孩子(84%)在两到三岁时被诊断出患有 ASD。三分之一的母亲报告说,在诊断前收到了四到七次转介。母亲们确定了多种诊断情况,包括两次诊断和诊断前提供的服务。一项多案例研究设计记录了四位代表性参与者的诊断和治疗经历。与之前使用缺陷视角来合理化诊断和治疗障碍的研究(例如,父母对 ASD 缺乏了解)相比,这些发现揭示了对结构障碍(例如,移民身份)、护理人员最初拒绝诊断以及服务突然取消如何使诊断和治疗过程复杂化的复杂理解。确定了一些建议,以优化和简化墨西哥裔家庭的 ASD 诊断和治疗途径。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5de3/9986214/ca1ffc12889b/10803_2022_5512_Fig1_HTML.jpg

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