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决定他人生死时的道德困境

Moral Distress in Deciding How Others Die.

出版信息

Perspect Biol Med. 2022;65(1):59-72. doi: 10.1353/pbm.2022.0003.

Abstract

This essay discusses how Susan Shapiro's Speaking for the Dying (2019) contributes to understanding surrogate decision-making in intensive care. Shapiro's ethnography is based on over two years of observing day-to-day decision-making by surrogates and family members who found themselves having to speak for loved ones who were no longer capable of expressing their own wishes for treatment or its termination. After summarizing Shapiro's specific findings-in particular what made no observable difference in decision-making, including advance directives-greater attention is given to how she acts as a witness to the emotional burden and distress that these decisions cause for both family members and professional staff. Shapiro allows us to hear the voices of people forced to make high-stakes decisions in the most stressful conditions with little guidance. We hear the contradictions inherent in surrogate decision-making and gain insight into how the institutional organization of intensive care produces moral distress.

摘要

这篇文章探讨了苏珊·夏皮罗(Susan Shapiro)的《为临终者代言》(Speaking for the Dying,2019 年)如何有助于理解重症监护中的代理决策。夏皮罗的民族志基于她对代理人和家属的日常决策进行了两年多的观察,这些代理人和家属发现自己不得不代表那些无法再表达自己对治疗或停止治疗意愿的亲人做出决策。在总结了夏皮罗的具体发现(特别是在决策中没有观察到差异的方面,包括预先指示)之后,更多的关注是她如何作为证人,见证这些决策给家属和专业人员带来的情感负担和痛苦。夏皮罗让我们听到了在几乎没有指导的情况下,在最紧张的条件下被迫做出高风险决策的人们的声音。我们听到了代理决策中固有的矛盾,并深入了解重症监护的机构组织如何产生道德困境。

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