Suppr超能文献

调查英国头颈部癌症的同伴支持模式。

A survey to ascertain peer support models available in Head and Neck cancer across the United Kingdom.

机构信息

School of Health Sciences, Institute of Population Health/Liverpool Head and Neck Centre, University of Liverpool, 1.17 Thompson Yates Building, The Quadrangle, Brownlow Hill, Liverpool L69 3GB, United Kingdom.

NWCR Centre - University of Liverpool, Department of Molecular and Clinical Cancer Medicine, University of Liverpool, 200 London Road, Liverpool L3 9GA, United Kingdom.

出版信息

Br J Oral Maxillofac Surg. 2022 May;60(4):488-492. doi: 10.1016/j.bjoms.2021.09.005. Epub 2021 Sep 16.

Abstract

In cancers and chronic conditions, peer support (PS) has been shown to improve quality of life (QOL) and provide an important coping mechanism for patients, however there is little evidence for this intervention in Head and Neck cancer (HNC). Peer support allows individuals to come together and share information, encouragement, and experiences. It is delivered in a variety of ways including one-to-one, online, and support groups. There is limited literature regarding the timing, barriers, and types of PS available for individuals with HNC across the United Kingdom (UK). The aim of this project was to survey healthcare professionals with respect to their experience regarding types, timings, and barriers to PS in HNC. The survey was developed based on the literature, feedback and advice from a HNC patient research group and healthcare professionals. It was conducted online and consisted of twelve questions. Eighty-eight individuals responded covering twenty-four of twenty-six cancer alliances across the UK. Three main themes with subthemes were identified: patient barriers (emotional barriers and patient limitations), organisational barriers (administrative problems, limited time and resources and COVID-19), and staff barriers (lack of departmental support, concerns with PS and matching and timing of support). The survey demonstrated the different types of PS available across the UK and the barriers faced when implementing this support. It highlighted the complexity of being able to satisfactorily deliver appropriate and effective PS in HNC and the challenges involved.

摘要

在癌症和慢性病中,同伴支持 (PS) 已被证明可以改善生活质量 (QOL),并为患者提供重要的应对机制,但在头颈部癌症 (HNC) 中,这种干预措施的证据很少。同伴支持使个人能够聚集在一起,分享信息、鼓励和经验。它以多种方式提供,包括一对一、在线和支持小组。关于英国 (UK) 范围内 HNC 患者可用的 PS 的时间安排、障碍和类型,相关文献有限。该项目的目的是调查医疗保健专业人员,了解他们在 HNC 中关于 PS 的类型、时间安排和障碍的经验。该调查是根据文献、HNC 患者研究小组和医疗保健专业人员的反馈和建议制定的。它是在线进行的,共有十二个问题。有 88 人做出了回应,涵盖了英国 26 个癌症联盟中的 24 个。确定了三个主要主题和子主题:患者障碍(情绪障碍和患者限制)、组织障碍(行政问题、时间和资源有限以及 COVID-19)以及员工障碍(缺乏部门支持、对 PS 的担忧以及支持的匹配和时间安排)。该调查展示了英国各地提供的不同类型的 PS 以及实施这种支持所面临的障碍。它强调了在 HNC 中能够令人满意地提供适当和有效的 PS 的复杂性以及所涉及的挑战。

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