Koch Adriana, Diumenjo Maria, Laspada Walter, Soerjomataram Isabelle, Pineros Marion
J Registry Manag. 2020 Summer;47(2):32-36.
The validity of data provided by population-based cancer registries (PBCRs) is a key aspect in cancer surveillance. Tracing back cases initially reported by death certificate or death-certificate-notified (DCN) cases, improves data quality and has an especially significant impact on survival estimates. The present study performed in the Mendoza PBCR describes the trace-back procedure of cancer cases notified by death certificate for selected cancers (liver, lung, and stomach cancers) with the aim of reducing the percentage of cases diagnosed by death certificate only (DCO). The study was performed in 2018 using cancers diagnosed between 2006 and 2012 in the framework of a survival project (SURVCAN-3). Among the 822 cases that have been traced back, only 32.1% had an identified source of information. Of these, 70.3% had medical records available for review. Of the reviewed medical records, 86.9% of cancer diagnoses were confirmed. The DCN and DCO cases were much higher among older age groups. With the trace-back, the overall percentage of DCO was reduced from 23.8% to 19.9%. We conclude that DCN trace-back could improve data quality by reducing DCO diagnoses, which directly impacts survival estimates. Trace-back should be performed routinely and in a timely manner.
基于人群的癌症登记处（PBCRs）提供的数据有效性是癌症监测的一个关键方面。追溯最初通过死亡证明报告的病例或死亡证明通知（DCN）病例，可提高数据质量，对生存估计有特别重大的影响。在门多萨PBCR进行的本研究描述了对选定癌症（肝癌、肺癌和胃癌）通过死亡证明通知的癌症病例的追溯程序，目的是减少仅通过死亡证明诊断的病例（DCO）的百分比。该研究于2018年进行，使用了2006年至2012年在一个生存项目（SURVCAN-3）框架内诊断的癌症病例。在已追溯的822例病例中，只有32.1%有确定的信息来源。其中，70.3%有可供审查的医疗记录。在审查的医疗记录中，86.9%的癌症诊断得到证实。DCN和DCO病例在老年人群中要高得多。通过追溯，DCO的总体百分比从23.8%降至19.9%。我们得出结论，DCN追溯可通过减少DCO诊断来提高数据质量，这直接影响生存估计。追溯应定期且及时进行。
