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希腊围产期护理中生物伦理问题的认知方法。

The Cognitive Approach to Bioethical Issues in Perinatal Care in Greece.

作者信息

Glynou Anna, Frysira Elena, Christakakou-Fotiadi Kalliopi, Eleftheriadis Makarios, Sarella Angeliki, Stergiotou Iosifina, Koukaki Maria, Chasalevri Eirini, Galatis Dionysios, Salakos Nicolaos

机构信息

Fourth Department of Nursing/Midwifery, Maternity Hospital Elena Venizelou, Athens, GRC.

Laboratory of Medical Genetics, National and Kapodistrian University of Athens, Athens, GRC.

出版信息

Cureus. 2022 Mar 1;14(3):e22760. doi: 10.7759/cureus.22760. eCollection 2022 Mar.

DOI:10.7759/cureus.22760
PMID:35371863
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8973825/
Abstract

BACKGROUND AND AIM

Current practice in prenatal diagnosis becomes challenging with new bioethics issues emerging constantly during daily clinical routine. Although fetal interventions are driven by a motivation to improve the health of the fetus, progress in fetal therapies raises issues of maternal autonomy. The objective of this article is to assess bioethics in prenatal diagnosis in Greece as well as bioethics education.

METHODS

The study was conducted between October 2018 and December 2019. Two hundred and twenty eligible responders were involved in fetal and perinatal medicine in Greece. The questionnaire was developed as a Likert scale. Part 1 covered the participants' general opinion about bioethics. Part 2 covered ethical dilemmas likely to arise when routine screening presents a complicated result.

RESULTS

In the study, 92.3% of the participants considered that the branch of bioethics is necessary in medical practice. Regarding challenging bioethics issues, only 86% of the participants consider that the miscarriage risk should be discussed after an invasive procedure. Furthermore, it is not clear for responders whether informed consent is a medical or legal obligation (43% vs 33%) and whether information should be provided orally or written (49% vs 46%). Finally, 32% of healthcare practitioners declare that they are not fully aware of the law concerning the rights of the fetus.

CONCLUSIONS

Although healthcare professionals acknowledge the distinct role of bioethics, mismanagement of ethical dilemmas reveals that under-graduate teaching of this discipline is not addressed effectively. Identifying the parameters that would improve the learning process would make a significant contribution in the routine clinical practice.

摘要

背景与目的

随着日常临床工作中不断出现新的生物伦理问题,当前的产前诊断实践面临挑战。尽管胎儿干预是出于改善胎儿健康的动机,但胎儿治疗的进展引发了产妇自主权的问题。本文的目的是评估希腊产前诊断中的生物伦理以及生物伦理教育。

方法

该研究于2018年10月至2019年12月进行。希腊220名符合条件的应答者参与了胎儿与围产期医学研究。问卷采用李克特量表形式编制。第一部分涵盖参与者对生物伦理的总体看法。第二部分涵盖常规筛查出现复杂结果时可能出现的伦理困境。

结果

在该研究中,92.3%的参与者认为生物伦理学科在医学实践中是必要的。关于具有挑战性的生物伦理问题,只有86%的参与者认为在侵入性操作后应讨论流产风险。此外,应答者不清楚知情同意是医疗义务还是法律义务(43%对33%),以及信息应以口头还是书面形式提供(49%对46%)。最后,32%的医疗从业者宣称他们并不完全了解有关胎儿权利的法律。

结论

尽管医疗专业人员承认生物伦理的独特作用,但伦理困境的管理不善表明该学科的本科教学未得到有效解决。确定能够改善学习过程的参数将对日常临床实践做出重大贡献。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd1d/8973825/2c267e95efd7/cureus-0014-00000022760-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd1d/8973825/751affbc8b92/cureus-0014-00000022760-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd1d/8973825/9768cec018f3/cureus-0014-00000022760-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd1d/8973825/2c267e95efd7/cureus-0014-00000022760-i03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd1d/8973825/751affbc8b92/cureus-0014-00000022760-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd1d/8973825/9768cec018f3/cureus-0014-00000022760-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cd1d/8973825/2c267e95efd7/cureus-0014-00000022760-i03.jpg

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J Med Educ Curric Dev. 2019 Dec 2;6:2382120519883887. doi: 10.1177/2382120519883887. eCollection 2019 Jan-Dec.
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Mapping Bioethics in Latin America: History, Theoretical Models, and Scientific Output.绘制拉丁美洲的生命伦理学图谱:历史、理论模型和科学产出。
J Bioeth Inq. 2019 Sep;16(3):323-331. doi: 10.1007/s11673-019-09903-7. Epub 2019 Feb 18.
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Bioethics in Italian Medical and Healthcare Education. A Pilot Study.
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What are the goals of prenatal genetic testing?产前基因检测的目的是什么?
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Reflections on learning and teaching medical ethics in UK medical schools.对英国医学院校医学伦理学教学与学习的思考
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