Neurology, Hotel Dieu de France, Beirut, Lebanon; Université Saint Joseph, Beirut, Lebanon.
Université Reims-Champagne Ardenne, Laboratoire Cognition Santé, Société (C2S - EA 6291), Reims, France; Laboratoire de Psychopathologie et de Neuropsychologie, EA 2027, Paris, France.
Mult Scler Relat Disord. 2022 May;61:103758. doi: 10.1016/j.msard.2022.103758. Epub 2022 Mar 22.
The perception of diagnosis announcement, the social support and the coping strategies seem to be determining factors for the quality of life of multiple sclerosis (MS) patients, with possible transcultural variations. This study explores these psychosocial dimensions in Lebanese and French MS patients.
For this cross-sectional multi-center study, 8 questionnaires were used to assess quality of life, family support, coping strategies, mood, fatigue, stress, and hopelessness in MS patients. 7 were translated into Arabic and then back translated into French. These were administered to a group of Lebanese MS patients and compared to an MS sample from France. The data was collected for both populations and analyzed.
A total of 107 patients were included, 46 Lebanese and 61 French. The majority of MS patients were young females with a high level of education, relapsing remitting form of MS and a low level of disability. Both populations exhibited comparable quality of life and answers on the questionnaires regarding mood disorders, hopelessness, and perceived stress. However, the French patients had significantly more fatigue. Perceived social support given by family was considered greater in the French group compared to the Lebanese one. Also, maladaptive coping strategies (such as self-distraction, denial, behavioral disengagement, substance use, self-blame, venting) were used more frequently by the French population compared to the Lebanese, and this correlated with higher anxiety scores. Diagnosis communication was overall brief, informative, and satisfying in both populations.
This study highlighted transcultural differences between French and Lebanese MS patients mainly in social support and coping strategies.
诊断告知的感知、社会支持和应对策略似乎是多发性硬化症（MS）患者生活质量的决定因素，且可能存在跨文化差异。本研究探讨了黎巴嫩和法国 MS 患者的这些心理社会维度。
在这项横断面多中心研究中，使用 8 种问卷评估 MS 患者的生活质量、家庭支持、应对策略、情绪、疲劳、压力和绝望感。其中 7 种问卷被翻译为阿拉伯语，然后再翻译为法语。这些问卷被用于一组黎巴嫩 MS 患者，并与来自法国的 MS 患者样本进行比较。收集了这两个群体的数据并进行了分析。
共纳入 107 例患者，其中 46 例为黎巴嫩患者，61 例为法国患者。大多数 MS 患者为年轻女性，受过高等教育，患有缓解复发型 MS，残疾程度较低。两个群体的生活质量和情绪障碍、绝望感和感知压力的问卷回答都相似。然而，法国患者的疲劳感更明显。与黎巴嫩患者相比，法国患者的家庭给予的社会支持被认为更大。此外，与黎巴嫩患者相比，法国患者更频繁地使用适应不良的应对策略（如自我分散、否认、行为脱离、物质使用、自责、发泄），这与更高的焦虑评分相关。在这两个群体中，诊断沟通总体上都是简短、信息丰富且令人满意的。
本研究强调了法国和黎巴嫩 MS 患者之间的跨文化差异，主要体现在社会支持和应对策略方面。
