Department of Health and Caring Sciences, Western Norway University of Applied Sciences, Bergen, Vestlandet, Norway.
Department of Medicine, Vestre Viken Hospital Trust, Drammen, Norway.
BMJ Open. 2022 Apr 7;12(4):e056027. doi: 10.1136/bmjopen-2021-056027.
OBJECTIVES: The aim of this study was to describe the experiences of adults with type 1 diabetes (T1DM) during the COVID-19 pandemic in Norway, and what actions they took to cope with the situation. DESIGN: An inductive, descriptive design applying the critical incident technique was used to collect qualitative data between July 2020 and December 2020. SETTING: A strategic selection was made from diabetes specialist outpatient clinics at three different hospitals in eastern Norway. The hospitals, two community hospitals and one university hospital, were situated in both rural and urban areas. PARTICIPANTS: Inclusion criteria were people with T1DM aged 18-65 years. Exclusion criteria were pregnancy, people with chronic pulmonary disorders, people with active cancer diseases and people diagnosed with a myocardial infarction or stroke during the previous 6 months. Semistructured individual interviews with 19 people with T1DM were conducted. RESULTS: Experiences were categorised into two main areas: 'increased psychosocial burden of T1DM during the COVID-19 pandemic' and 'changed conditions for T1DM treatment during the COVID-19 pandemic'. Uncertainty distress and social consequences from infection control measures contributed to the burden of T1DM. Disrupted T1DM follow-up and altered daily routines created challenges. However, having increased time to focus on T1DM self-management during lockdown represented an improvement. Actions to handle the situation were categorised into two main areas: 'actions to handle psychosocial strain related to T1DM and COVID-19' and 'actions to handle changed conditions for T1DM treatment during the COVID-19 pandemic'. CONCLUSIONS: Patients experienced an increased psychosocial burden of T1DM and difficulties from a disrupted daily life affecting T1DM self-management routines. Uncertainty-reducing behaviours and actions to adapt to the situation provided a general sense of coping despite these difficulties. Tailored information and follow-up by telephone or video call was emphasised to reduce uncertainly distress and support adequate diabetes T1DM self-management.
目的:本研究旨在描述挪威成人 1 型糖尿病(T1DM)患者在 COVID-19 大流行期间的经历,以及他们为应对这种情况而采取的行动。
设计:采用批判性事件技术的归纳描述性设计,于 2020 年 7 月至 12 月期间收集定性数据。
地点:从挪威东部三家不同医院的糖尿病专科门诊进行战略性选择。这些医院包括两家社区医院和一家大学医院,分别位于农村和城市地区。
参与者:纳入标准为年龄在 18-65 岁的 T1DM 患者。排除标准为妊娠、慢性肺部疾病、活动性癌症疾病以及在过去 6 个月内被诊断为心肌梗死或中风的患者。对 19 名 T1DM 患者进行了半结构化个体访谈。
结果:经验可分为两个主要领域:“COVID-19 大流行期间 T1DM 的心理社会负担增加”和“COVID-19 大流行期间 T1DM 治疗条件的改变”。感染控制措施的不确定性困扰和社会后果增加了 T1DM 的负担。T1DM 随访中断和日常生活规律改变带来挑战。然而,在封锁期间有更多时间专注于 T1DM 自我管理是一种改善。处理这种情况的措施可分为两个主要领域:“处理与 T1DM 和 COVID-19 相关的心理社会压力的措施”和“处理 COVID-19 大流行期间 T1DM 治疗条件改变的措施”。
结论:患者经历了 T1DM 的心理社会负担增加以及日常生活中断对 T1DM 自我管理常规的影响。减少不确定性的行为和适应情况的措施提供了应对这些困难的普遍感觉。强调通过电话或视频通话提供量身定制的信息和随访,以减少不确定性困扰并支持适当的 T1DM 自我管理。
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