常染色体显性多囊肾病患者疾病认知与肾病严重程度的关系。
Relationship between disease awareness and severity of kidney disease in autosomal dominant polycystic kidney disease patients.
机构信息
Department of Internal Medicine, Bozyaka Education and Research Hospital, Izmir Faculty of Medicine, University of Health Science, Izmir, Turkey.
Department of Nephrology, Faculty of Medicine, Kocaeli University, Izmit, Turkey.
出版信息
Ther Apher Dial. 2023 Feb;27(1):117-122. doi: 10.1111/1744-9987.13860. Epub 2022 May 10.
INTRODUCTION
Polycystic kidney disease (PKD) is responsible for 5%-10% of end-stage renal disease. We examined the relationship between renal and extrarenal findings, disease severity, and the level of consciousness of PKD patients.
METHODS
Patients were asked to answer the questionnaire about PKD. Disease severity was determined according to estimated glomerular filtration rate, and disease awareness was assessed by adapting the Disease Perception Scale to PKD. Awareness of patients was evaluated comparatively with chronic kidney disease stage, age, region, and symptoms.
RESULTS
One out of five patients does not know that this disease is inherited. Mean awareness scores of the patients decreased significantly with increasing age. Awareness scores were significantly higher in patients with flank pain, hematuria, and urinary tract stones.
CONCLUSION
Although PKD is the most common hereditary kidney disease, the rate of patients' knowledge on this subject is low. Increased awareness might lead to better treatment in those patients.
简介
多囊肾病（PKD）占终末期肾病的 5%-10%。我们研究了 PKD 患者的肾脏和肾脏外表现、疾病严重程度和意识水平之间的关系。
方法
患者被要求回答关于 PKD 的问卷。根据估计肾小球滤过率确定疾病严重程度，并通过适应 PKD 来评估疾病意识量表来评估疾病意识。将患者的意识与慢性肾脏病分期、年龄、地区和症状进行比较评估。
结果
五分之一的患者不知道这种疾病是遗传性的。患者的平均意识评分随年龄增长而显著降低。有腰痛、血尿和尿路结石的患者的意识评分显著较高。
结论
尽管 PKD 是最常见的遗传性肾脏疾病，但患者对此主题的认识率较低。提高认识可能会导致这些患者得到更好的治疗。
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