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活着最重要——探索肝移植后体重增加患者的体验:一项定性研究。

The Main Thing is to be Alive-Exploring Patients' Experiences With Weight Gain After Liver Transplantation: A Qualitative Study.

机构信息

Nursing Science, University of Basel, Basel, Switzerland.

Center of Clinical Nursing Science, University Hospital Zurich, Zurich, Switzerland.

出版信息

Transpl Int. 2022 Apr 14;35:10256. doi: 10.3389/ti.2022.10256. eCollection 2022.

DOI:10.3389/ti.2022.10256
PMID:35497890
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9046544/
Abstract

Weight gain after liver transplantation (LTx) contributes to new-onset obesity. We explored patients' experiences with gaining weight after LTx. Individual interviews were guided by open-ended questions. We analyzed transcripts with the reflexive thematic analysis approach by Braun and Clarke. The 12 participants gained 11.5 kg weight (median) over a median of 23 months after LTx. The constitutive theme "The main thing is to be alive" was a recurrent insight, captured in three facets: "The arduous path back to living" was the emotional expression of the ups and downs during a life-threatening illness to finally being grateful for the new life. "A pleasurable new phase of life" was the legitimation, reflecting the appreciation of gaining weight and returning to a healthy appearance. "I am allowed to look like this now" was the consoling facet after a time of burden due to the increased weight and frustration of being unsuccessful in losing weight. Finally, the awareness of being a LTx survivor outplayed the burden of the excess weight. Early interventions are crucial because the comforting insight "I am allowed to look like this now" may hinder further engagement in weight loss activities. Our recommendations on education and self-management support may guide clinical practice.

摘要

肝移植(LTx)后体重增加会导致新发肥胖症。我们探讨了患者在 LTx 后增重的体验。个体访谈以开放式问题为指导。我们使用 Braun 和 Clarke 的反思性主题分析方法对转录本进行了分析。12 名参与者在 LTx 后平均 23 个月内体重增加了 11.5 公斤(中位数)。主题“重要的是要活着”是一个反复出现的观点,体现在三个方面:“回到生活的艰难道路”是在危及生命的疾病期间的情绪表达,最终对新生活表示感激。“生活中一个愉快的新阶段”是对增重和恢复健康外表的认可。“我现在可以这样看了”是在因体重增加和减肥失败而感到沮丧而感到负担沉重之后的安慰方面。最后,作为 LTx 幸存者的意识超过了超重的负担。早期干预至关重要,因为“我现在可以这样看了”的安慰性观点可能会阻碍进一步参与减肥活动。我们关于教育和自我管理支持的建议可能会指导临床实践。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8f74/9046544/bcfc8e0eb967/ti-35-10256-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8f74/9046544/bcfc8e0eb967/ti-35-10256-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8f74/9046544/bcfc8e0eb967/ti-35-10256-g001.jpg

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Liver cirrhosis turns life into an unpredictable roller coaster: A qualitative interview study.肝硬化使生活变成一场无法预测的过山车:一项定性访谈研究。
J Clin Nurs. 2020 Dec;29(23-24):4532-4543. doi: 10.1111/jocn.15478. Epub 2020 Oct 6.
3
An exploratory study of the experiences of deceased-donor liver transplant recipients and their need for psychotherapeutic support.
对已故供肝肝移植受者的体验及其对心理治疗支持需求的探索性研究。
J Clin Nurs. 2020 Aug;29(15-16):2991-2998. doi: 10.1111/jocn.15309. Epub 2020 May 17.
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Post-transplant obesity impacts long-term survival after liver transplantation.肝移植后肥胖会影响长期生存。
Metabolism. 2020 May;106:154204. doi: 10.1016/j.metabol.2020.154204. Epub 2020 Mar 13.
5
Patient Perspectives of Weight Gain Following Orthotopic Liver Transplantation: A Qualitative Study.原位肝移植后体重增加的患者观点:一项定性研究
Liver Transpl. 2020 Apr;26(4):591-597. doi: 10.1002/lt.25698.
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