Handler Stephanie S, Varghese Nidhy P, Rosenzweig Erika B, Yung Delphine, Krishnan Usha, Whalen Elise, Bates Angela, Avitabile Catherine M, Jackson Emma O, Hirsch Russel, Fineman Jeffrey, Abman Steven H
Department of Pediatrics, Division of Cardiology Medical College of Wisconsin Milwaukee Wisconsin USA.
Department of Pediatrics, Division of Pulmonology, Baylor College of Medicine Texas Children's Hospital Houston Texas USA.
Pulm Circ. 2022 Feb 15;12(1):e12031. doi: 10.1002/pul2.12031. eCollection 2022 Jan.
Pediatric pulmonary hypertension (PH) is a severe, life-threatening disease associated with diverse cardiac, pulmonary, and systemic disorders, which generally requires expertise from multiple disciplines for management. Unfortunately, expert centers are limited, often due to inadequate resources or unfamiliarity with needed components for success. The Pediatric Pulmonary Hypertension Network (PPHNet) includes expert centers in North America specifically dedicated to advancing the field of pediatric PH through research and excellent clinical care. PPHNet member sites were queried for valuable program components and these findings were discussed for consensus. Here we provide a collective overview of key elements of an optimal pediatric PH program: team composition, access to services, and commitment to education. It is our intention that this document will assist newer and/or smaller programs identify avenues and resources for growth and provide avenues for collaboration.
小儿肺动脉高压(PH)是一种严重的、危及生命的疾病,与多种心脏、肺部和全身性疾病相关,通常需要多学科的专业知识来进行管理。不幸的是,专家中心数量有限,这往往是由于资源不足或对成功所需的要素不熟悉所致。小儿肺动脉高压网络(PPHNet)包括北美地区专门致力于通过研究和优质临床护理推动小儿肺动脉高压领域发展的专家中心。我们向PPHNet成员站点询问了有价值的项目组成部分,并对这些结果进行了讨论以达成共识。在此,我们提供一个最佳小儿肺动脉高压项目关键要素的总体概述:团队构成、服务获取途径以及对教育的投入。我们希望本文档将帮助新成立的和/或规模较小的项目找到发展的途径和资源,并提供合作的途径。