Rohde Jacob A, Fisher Edwin B, Boynton Marcella H, Freelon Deen, Frohlich Dennis O, Barnes Edward L, Noar Seth M
Hussman School of Journalism and Media, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Department of Health Behavior, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
JMIR Form Res. 2022 May 6;6(5):e34960. doi: 10.2196/34960.
Mobile health technologies can be useful for providing disease self-management information and support to people with inflammatory bowel disease (IBD).
The aim of this study was to test a self-management SMS text messaging intervention for people with IBD. Our goal was to examine intervention feasibility, acceptability, and engagement and to preliminarily evaluate improvements in certain self-reported health outcomes among participants.
We developed an SMS text messaging program called Text4IBD. The program sent daily support messages and resources about disease self-management over the course of a 2-week, single-group, pretest-posttest intervention to participants (N=114) diagnosed with IBD. We examined intervention feasibility, acceptability, and engagement through Text4IBD message topic recall and use of resources (ie, visiting supplemental websites recommended by the Text4IBD program). We also assessed pretest-posttest measures of IBD-related distress, self-efficacy, perceived support, use of coping strategies, and medication adherence. Analyses examined participants' evaluations of the intervention and compared pretest-posttest changes in secondary outcomes using paired-samples statistics.
Approximately all participants who completed the intervention (n=105) were receptive to Text4IBD and viewed the program as feasible and acceptable. In addition, most participants (103/105, 98.1%) recalled at least one of the message topics sent by the program, and 79% (83/105) of them self-reported engaging with at least one of the external self-management resources recommended by the Text4IBD program. Pretest-posttest results showed reduced IBD-related distress (mean 3.33, SD 0.68 vs mean 2.86, SD 0.73; P<.001) and improvements in most other secondary outcomes.
Findings from this study highlight the value of SMS text messaging as a useful digital medium for providing support to people with IBD, particularly to those who may struggle with disease-related distress. Text4IBD was highly feasible and acceptable and may help people self-manage their IBD. Future studies should aim to evaluate this program in a randomized controlled trial in clinical settings.
移动健康技术对于向炎症性肠病(IBD)患者提供疾病自我管理信息和支持可能是有用的。
本研究的目的是测试一种针对IBD患者的自我管理短信干预措施。我们的目标是检查干预措施的可行性、可接受性和参与度,并初步评估参与者某些自我报告的健康结果的改善情况。
我们开发了一个名为Text4IBD的短信程序。该程序在为期2周的单组、干预前-干预后干预过程中,每天向114名被诊断为IBD的参与者发送有关疾病自我管理的支持信息和资源。我们通过Text4IBD信息主题回忆和资源使用情况(即访问Text4IBD程序推荐的补充网站)来检查干预措施的可行性、可接受性和参与度。我们还评估了IBD相关痛苦、自我效能感、感知支持、应对策略使用情况和药物依从性的干预前-干预后测量指标。分析考察了参与者对干预措施的评价,并使用配对样本统计方法比较了次要结果的干预前-干预后变化。
几乎所有完成干预的参与者(n = 105)都接受了Text4IBD,并认为该程序可行且可接受。此外,大多数参与者(103/105,98.1%)回忆起了该程序发送的至少一个信息主题,其中79%(83/105)的参与者自我报告参与了Text4IBD程序推荐的至少一种外部自我管理资源。干预前-干预后结果显示,IBD相关痛苦减轻(平均3.33,标准差0.68对平均2.86,标准差0.73;P <.001),大多数其他次要结果也有所改善。
本研究结果突出了短信作为一种有用的数字媒介为IBD患者提供支持的价值,特别是对于那些可能与疾病相关痛苦作斗争的患者。Text4IBD非常可行且可接受,可能有助于人们自我管理IBD。未来的研究应旨在在临床环境中的随机对照试验中评估该程序。