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女性易发性埃勒斯-当洛斯综合征和高活动度谱障碍的未被充分认识的情况。

The Underrecognized Conditions of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders in Women.

出版信息

Nurs Womens Health. 2022 Jun;26(3):174-183. doi: 10.1016/j.nwh.2022.03.005. Epub 2022 May 6.

Abstract

Hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders are conditions that disproportionately affect women and can result in morbidity, disability, and a poorer quality of life. These conditions are often not recognized by health care professionals, leading to significant delays in diagnosis, especially in women. Hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders are known as complex, multisystemic conditions that are frequently comorbid with autonomic dysfunction, mast cell activation syndrome, and autism. Education of health care professionals, including nurses, on these conditions could lead to earlier diagnosis, with improved management and thus better outcomes for those affected by these conditions.

摘要

易位型埃勒斯-当洛斯综合征和高活动度综合征谱障碍是过度影响女性的病症,可能导致发病率、残疾和较差的生活质量。这些病症通常未被医疗保健专业人员识别,导致诊断显著延迟,尤其是在女性中。易位型埃勒斯-当洛斯综合征和高活动度综合征谱障碍被称为复杂的多系统病症,经常与自主神经功能障碍、肥大细胞激活综合征和自闭症合并存在。对包括护士在内的医疗保健专业人员进行这些病症的教育可能会导致更早的诊断,从而改善管理,进而改善受这些病症影响的人的预后。

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