Aalders Jori, Nefs Giesje, Hartman Esther, A Nguyen Linh, Winterdijk Per, van Mil Edgar, Aanstoot Henk-Jan, Pouwer Frans
Department of Medical and Clinical Psychology, Center of Research on Psychological and Somatic Disorders [CoRPS], Tilburg University, Tilburg, The Netherlands.
Department of Psychology, University of Southern Denmark, Odense, Denmark.
Curr Diabetes Rev. 2023;19(5):e100522204559. doi: 10.2174/1573399818666220510172511.
The division of care responsibilities between parents and children with type 1 diabetes, and an optimal transfer of responsibilities from parent to child over time are assumed to be key for optimal diabetes outcomes during childhood and adolescence. However, an overview of instruments assessing this division as well as their psychometric qualities is currently lacking.
The study aims to 1) identify all existing instruments, 2) evaluate their psychometric properties, and 3) provide an overview of scoring methods.
Pubmed and PsycINFO were searched using a priori-defined search string. Peerreviewed studies in English using an instrument assessing the division of diabetes care responsibilities between children (6-18 years) and parents were included. In total, 84 of 725 articles qualified, covering 62 unique samples.
Thirteen questionnaires were identified. The Diabetes Family Responsibility Questionnaire (DFRQ) was most frequently used across studies. Instructions, content and number of tasks, response options, and scoring methods varied across questionnaires. Recent studies often adapted questionnaires, contributing to the heterogeneity across measures. Overall, reporting and quality of psychometric properties was suboptimal.
The division of diabetes care responsibilities can be operationalized with various instruments, each having its strengths and weaknesses but all with limited psychometric support. To measure the division of diabetes care responsibilities more adequately, an updated version of the popular DFRQ or a new scale needs to be developed and evaluated.
1型糖尿病患儿与其父母之间护理责任的划分，以及随着时间推移责任从父母到孩子的最佳转移，被认为是儿童和青少年时期实现最佳糖尿病治疗效果的关键。然而，目前缺乏对评估这种划分的工具及其心理测量学质量的概述。
本研究旨在1）识别所有现有的工具，2）评估其心理测量学特性，3）提供评分方法的概述。
使用预先定义的搜索字符串在PubMed和PsycINFO中进行搜索。纳入使用评估6至18岁儿童与父母之间糖尿病护理责任划分工具的英文同行评审研究。725篇文章中共有84篇符合条件，涵盖62个独特样本。
识别出13份问卷。糖尿病家庭责任问卷（DFRQ）在各项研究中使用最为频繁。不同问卷在指导说明、任务内容和数量、回答选项以及评分方法等方面存在差异。近期研究经常对问卷进行改编，导致各测量方法之间存在异质性。总体而言，心理测量学特性的报告和质量欠佳。
糖尿病护理责任的划分可以通过各种工具来实施，每种工具都有其优缺点，但所有工具的心理测量学支持都有限。为了更充分地测量糖尿病护理责任的划分，需要开发并评估流行的DFRQ的更新版本或新量表。
