Department of Haematology, Centre for Cancer and Organ Diseases, Copenhagen University Hospital - Rigshospitalet, Blegdamsvej 9, 2100, Copenhagen, Denmark.
Department of Oncology, Centre for Cancer and Organ Diseases, Copenhagen University Hospital - Rigshospitalet, Blegdamsvej 9, 2100, Copenhagen, Denmark.
Support Care Cancer. 2022 Aug;30(8):6923-6935. doi: 10.1007/s00520-022-07089-0. Epub 2022 May 11.
This study investigated the feasibility of a one-on-one peer support intervention in family caregivers of newly diagnosed patients with a hematological cancer during initial treatment.
The study was a one-arm feasibility study including family caregivers of newly diagnosed patients with hematological cancer (n = 26) and caregiver ambassadors who were family caregivers of previously treated patients as peer supporters (n = 17). The one-on-one peer support intervention consisted of three components: a caregiver ambassador preparatory course; 12 weeks of one-on-one peer support, and caregiver ambassador network meetings.
Family caregivers reported high satisfaction with the delivery and flexibility of one-on-one peer support and improved in most psychosocial outcomes over time. Telephone and text messages were the most used form of contact between the peers. Caregiver ambassadors reported high satisfaction with the preparatory course and used the available support from the network meetings. No adverse events were reported.
One-on-one peer support provided by a caregiver ambassador is feasible and safe in family caregivers of newly diagnosed hematological cancer patients during their initial treatment. Utilizing volunteer caregiver ambassadors has the potential to be a new support model in family caregivers of hematological cancer patients across diagnostic groups within a clinical setting.
NCT04039100, July 29, 2019.
本研究旨在探讨在血液恶性肿瘤初诊患者初始治疗期间，为其家庭照护者提供一对一同伴支持干预的可行性。
本研究为单臂可行性研究，纳入了新诊断为血液恶性肿瘤的患者的家庭照护者（n=26）和作为同伴支持者的曾接受过治疗的患者的家庭照护者（n=17）。一对一同伴支持干预包括三个部分：同伴支持者预备课程；12 周的一对一同伴支持，以及同伴支持者网络会议。
家庭照护者对一对一同伴支持的提供和灵活性高度满意，且随着时间的推移，大多数心理社会结局均得到改善。电话和短信是同伴之间最常用的联系方式。同伴支持者报告对预备课程满意度较高，并利用了网络会议提供的支持。未报告不良事件。
在血液恶性肿瘤初诊患者的初始治疗期间，由照护者同伴提供的一对一同伴支持是可行且安全的。利用志愿者照护者同伴，有潜力成为临床环境中不同诊断组血液恶性肿瘤患者家庭照护者的新支持模式。
NCT04039100，2019 年 7 月 29 日。
