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糖尿病患儿父母的糖尿病特异性功能。

Diabetes-specific functioning in parents of young children with recently diagnosed type 1 diabetes.

机构信息

Center for Translational Science, Children's National Hospital.

Center for Translational Science, Children's National Hospital, George Washington University School of Medicine and Health Sciences.

出版信息

Health Psychol. 2022 Jun;41(6):423-432. doi: 10.1037/hea0001164. Epub 2022 May 12.

Abstract

OBJECTIVE

A Type 1 diabetes (T1D) diagnosis in young children can cause significant family stress. Parents may experience increased depressive symptoms, but less is known about early diabetes-specific functioning (i.e., parental self-efficacy to manage diabetes, hypoglycemia fear, and coparenting conflict). We evaluated a theoretically based model of diabetes-specific functioning among parents of young children newly diagnosed with T1D (YC-T1D). The model included parent demographic variables, child illness-factors, family protective factors, and general parent emotional functioning.

METHOD

One hundred fifty-seven newly diagnosed YC-T1D ( = 4.4 ± 1.7 years; days postdiagnosis = 29.0 ± 15.4) and their primary caregivers (91.7% female; 61% non-Hispanic White) were assessed at baseline of a behavioral intervention randomized controlled trial. We used psychosocial measures to explore hypothesized domains associated with parents' diabetes-specific functioning using structural equation modeling.

RESULTS

More difficulties with parent emotional functioning were related to more problems with parent diabetes-specific functioning, and higher family protective factors were related to fewer problems with diabetes-specific functioning. Child-illness factors were also directly related to more difficulties with parent diabetes-specific functioning and emotional functioning. Parents with college education reported more difficulties with emotional functioning and parent diabetes-specific functioning. Younger child age was associated with fewer difficulties with emotional functioning and more family protective factors.

CONCLUSIONS

Results provide initial support for a model of parent diabetes specific-functioning at young child T1D diagnosis. Future research may examine this model in relation to children's glycemic outcomes over the first year after diagnosis. Implications are made for parent screening at the time of YC-T1D diagnosis. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

摘要

目的

儿童期 1 型糖尿病(T1D)的诊断会给家庭带来巨大的压力。父母可能会经历更多的抑郁症状,但对于糖尿病的特定功能(即管理糖尿病的父母自我效能、低血糖恐惧和共同养育冲突)的早期研究则较少。我们评估了一个基于理论的新诊断为 T1D 的幼儿(YC-T1D)的父母的糖尿病特定功能模型。该模型包括父母的人口统计学变量、儿童疾病因素、家庭保护因素和一般父母的情绪功能。

方法

在一项行为干预随机对照试验的基线期,对 157 名新诊断为 YC-T1D 的儿童(=4.4±1.7 岁;诊断后天数=29.0±15.4)及其主要照顾者(91.7%女性;61%非西班牙裔白人)进行了评估。我们使用心理社会测量来探索与父母的糖尿病特定功能相关的假设领域,使用结构方程模型进行分析。

结果

父母的情绪功能越困难,与父母的糖尿病特定功能越困难相关,而家庭保护因素越高,与糖尿病特定功能越困难相关。儿童疾病因素也与父母的糖尿病特定功能和情绪功能的更多困难直接相关。接受过大学教育的父母报告说,他们在情绪功能和父母的糖尿病特定功能方面有更多的困难。年龄较小的孩子与情绪功能的困难较少和更多的家庭保护因素有关。

结论

研究结果初步支持了儿童期 T1D 诊断时父母糖尿病特定功能的模型。未来的研究可能会在儿童诊断后第一年的血糖结果方面检验该模型。这对 YC-T1D 诊断时对父母的筛查具有启示意义。

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