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帕金森病患者的运动锻炼:利与弊,以及保持锻炼的支持需求。一项定性研究。

Exercising with Parkinson's: The good, the bad and the need for support to keep exercising. A qualitative study.

机构信息

Physiotherapy, Sydney School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.

Discipline of Physiotherapy, Faculty of Health, 2234University of Canberra, Canberra Australia.

出版信息

Clin Rehabil. 2022 Oct;36(10):1332-1341. doi: 10.1177/02692155221100884. Epub 2022 May 13.

DOI:10.1177/02692155221100884
Abstract

OBJECTIVES

To explore the experiences of people with Parkinson's disease exercising and to determine if the location (home versus centre) or exercising in a group impacted on their experience.

DESIGN

A qualitative study.

PARTICIPANTS

Community-dwelling people with mild to moderate Parkinson's disease who had undertaken a 10-week exercise intervention.

METHOD

Semi-structured interviews were conducted with 17 participants; nine participants had completed 10-weeks of predominately home-based exercise and eight participants had predominately centre-based excercise. Interviews were recorded, transcribed verbatim and analysed using inductive thematic analysis.

RESULTS

Four key themes emerged. Two themes: 'targeted exercise is important when you have Parkinson's disease' and 'support helps me to gain the most from the exercise', were related to exercising with Parkinson's disease and were not specific to location. Two themes encompassed the perceptions when exercising at a centre in a group compared to exercising at home: 'the good and the bad of exercising in a group' and 'exercising at home, can I do it?'

CONCLUSION

Experiences of people with Parkinson's disease when exercising were primarily influenced by the prescription of specific exercise and the support provided. There was no clear preference for the location of exercise but maintaining the motivation to exercise at home was challenging.

摘要

目的

探索帕金森病患者锻炼的体验,并确定锻炼的地点(家庭与中心)或是否在小组中进行是否会影响他们的体验。

设计

定性研究。

参与者

居住在社区的轻至中度帕金森病患者,他们参加了为期 10 周的锻炼干预。

方法

对 17 名参与者进行了半结构化访谈;其中 9 名参与者完成了 10 周的主要基于家庭的锻炼,8 名参与者主要在中心进行锻炼。对访谈进行了记录、逐字转录,并使用归纳主题分析进行了分析。

结果

出现了四个主要主题。其中两个主题:“当你患有帕金森病时,有针对性的锻炼很重要”和“支持帮助我从锻炼中获得最大收益”,与帕金森病患者的锻炼有关,与锻炼地点无关。另外两个主题包括在小组中在中心锻炼与在家锻炼的看法:“小组锻炼的优缺点”和“在家锻炼,我可以做到吗?”

结论

帕金森病患者锻炼的体验主要受到特定运动处方和提供的支持的影响。锻炼地点没有明显偏好,但在家中保持锻炼的动力是具有挑战性的。

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