Acquired Brain Injury Research Lab, University of Toronto, Toronto, Canada.
Toronto Rehabilitation Institute (KITE), University Health Network, Toronto, Canada.
Disabil Rehabil. 2023 May;45(10):1636-1645. doi: 10.1080/09638288.2022.2071483. Epub 2022 May 16.
Research shows that patients' perceptions of themselves and others, in addition to their understanding of the concept of gender, changes after traumatic brain injury (TBI). Little is known about gendered experiences in TBI and care delivery. This study aims to explore perceptions of gender through life experiences and interactions between adult patients with TBI and their informal caregivers.
Seven patients with mild and moderate-severe TBI and eight informal caregivers were interviewed. Transcripts were coded and analysed according to Braun and Clarke's thematic analysis. The Consolidated Criteria for Reporting Qualitative Research guidelines were followed in reporting results.
The participants described a transformation of their understanding and experiences of gender following the TBI event. Three themes were identified: (1) ;( 2) ; and (3) .
The findings emphasize the importance of raising awareness among researchers and practitioners on gender as a transformative process for patients with TBI and informal caregivers after the injury. The diversity of patient-caregiver experiences and critical needs based on gender call for intervention approaches that mitigate gender disparities in giving and receiving care. Implications for RehabilitationHistorically, rehabilitation of persons with traumatic brain injury has targeted physical and cognitive impairments, with little attention to their gendered demands in the lived environment.Gender prevails in the lived experiences of persons with traumatic brain injury, and their informal caregivers, and in giving and receiving quality care.A major challenge for clinicians is identifying harmful gendered roles, norms, and relations and the affective/behavioral problems they produce to alleviate enduring distress and reduce disability.Rehabilitation interventions focusing on flexible and adaptive responses to gendered demands in the lived environment of persons with traumatic brain injury are timely.
研究表明，创伤性脑损伤（TBI）后，除了对性别的理解外，患者对自身和他人的看法也会发生变化。关于 TBI 患者和他们的非专业照顾者之间的性别体验和护理提供，人们知之甚少。本研究旨在通过成年 TBI 患者的生活经历和他们与非专业照顾者之间的互动，探讨对性别的看法。
对 7 名轻度和中重度 TBI 患者和 8 名非专业照顾者进行了访谈。根据 Braun 和 Clarke 的主题分析对转录本进行编码和分析。在报告结果时，遵循了《定性研究报告的统一标准》指南。
参与者描述了他们在 TBI 事件后对性别的理解和体验发生了转变。确定了三个主题：（1）；（2）；和（3）。
这些发现强调了在研究人员和从业者中提高对性别认识的重要性，因为性别对于 TBI 患者和受伤后的非专业照顾者来说是一个转变过程。患者-照顾者体验和基于性别的关键需求的多样性呼吁采取干预措施，以减少提供和接受护理方面的性别差距。
从历史上看，创伤性脑损伤患者的康复主要针对身体和认知障碍，而对他们在现实生活环境中的性别需求关注较少。性别在创伤性脑损伤患者及其非专业照顾者的生活经历中以及在提供和接受优质护理方面都占主导地位。对于临床医生来说，一个主要挑战是确定有害的性别角色、规范和关系，以及它们产生的情感/行为问题，以减轻持久的痛苦并减少残疾。针对创伤性脑损伤患者现实生活环境中的性别需求，采取灵活和适应性的康复干预措施是及时的。
