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让有亲身经历的人作为肌肉骨骼研究的合作伙伴:来自新西兰肌肉骨骼研究人员调查的经验教训。

Involving People With Lived Experience as Partners in Musculoskeletal Research: Lessons From a Survey of Aotearoa/New Zealand Musculoskeletal Researchers.

出版信息

J Orthop Sports Phys Ther. 2022 Jun;52(6):307-311. doi: 10.2519/jospt.2022.10986. Epub 2022 May 16.

DOI:10.2519/jospt.2022.10986
PMID:35575723
Abstract

Involving patients as partners in research enables their concerns, perspectives, lived experiences, and priorities to be integrated into research. Involving patient partners improves research processes, outcomes, and translating findings into practice. Although musculoskeletal researchers consider that it is important to involve patient partners, few projects involve them. Researchers who involve patient partners report that the contributions of patient partners are very valuable, and researchers perceive the process to be less challenging than expected. Musculoskeletal research is staring at a significant unrealized opportunity to enhance the quality and impact of research and reduce research waste-think what the field could achieve if researchers and patients worked better together. A culture change is needed so that involving patient partners in musculoskeletal research becomes standard practice, expected and supported by funders, journals, research institutions, and researchers alike. .

摘要

让患者作为研究伙伴参与其中,可以使他们的关注点、观点、生活经历和优先事项融入到研究中。让患者伙伴参与进来,可以改善研究过程、结果,并将研究结果转化为实践。尽管肌肉骨骼研究人员认为让患者伙伴参与研究很重要,但很少有项目涉及他们。让患者伙伴参与进来的研究人员报告说,他们的贡献非常有价值,而且研究人员认为这个过程比预期的要具有挑战性。肌肉骨骼研究正面临着一个巨大的未实现的机会,可以提高研究的质量和影响力,减少研究浪费——如果研究人员和患者能够更好地合作,这个领域可以取得什么成就。需要进行文化变革,使患者伙伴参与肌肉骨骼研究成为标准做法,得到资助者、期刊、研究机构和研究人员的共同期望和支持。

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引用本文的文献

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Prioritisation of clinical trial learning needs of musculoskeletal researchers: an inter-disciplinary modified Delphi study by the Australia & New Zealand musculoskeletal clinical trials network.肌肉骨骼系统临床研究人员临床试验学习需求的优先级排序:澳大利亚和新西兰肌肉骨骼临床研究网络的跨学科改良德尔菲研究。
BMC Med Educ. 2024 Jul 8;24(1):735. doi: 10.1186/s12909-024-05732-4.
2
EULAR recommendations for the involvement of patient research partners in rheumatology research: 2023 update.EULAR 关于患者研究伙伴参与风湿病学研究的建议:2023 年更新版。
Ann Rheum Dis. 2024 Oct 21;83(11):1443-1453. doi: 10.1136/ard-2024-225566.
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Patient research partner involvement in rheumatology research: a systematic literature review informing the 2023 updated EULAR recommendations for the involvement of patient research partners.
患者研究伙伴参与风湿病学研究:系统文献回顾为 2023 年更新的 EULAR 患者研究伙伴参与建议提供信息。
Ann Rheum Dis. 2024 Sep 30;83(10):1268-1277. doi: 10.1136/ard-2024-225567.