Uhlenbusch Natalie, Manthey Carolin, Nestoriuc Yvonne, Andresen Viola, Lohse Ansgar W, Löwe Bernd
Klinik und Poliklinik für Psychosomatische Medizin und Psychotherapie, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.
I. Medizinische Klinik und Poliklinik, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.
Psychother Psychosom Med Psychol. 2022 Nov;72(11):481-490. doi: 10.1055/a-1785-5496. Epub 2022 May 18.
Ulcerative colitis (UC) and irritable bowel syndrome (IBS) are associated with high somatic symptom burden, reduced quality of life, and increased psychological distress. The subjective burden, the wish of many patients, and the involvement of psychological processes in symptom perception justify the development of psychosocial support services. We aimed to evaluate need, content and feasibility of such an offer. We included patients with both UC and RDS in order to identify disease-specific and trans-diagnostic aspects for psychosocial interventions.
We conducted telephone interviews with adult patients with UC or IBS using a standardized interview guide. We used numerical rating scales and open-ended questions to assess burden of and coping with the disease, disease-related expectations and anxiety, satisfaction with care, support and information needs, and preferences regarding support programs. We calculated descriptive metrics for quantitative variables as well as diagnosis-specific group comparisons. The answers to the open questions were summarised and counted in close accordance with the participants' statements.
=35 patients (UC: = 15; IBS: =20) participated (age: =40.80, =14.56; 71% female). In both groups, patients showed a medium level of disease burden, with higher rates for IBS. Both groups reported disease-related anxiety, with higher levels in patients with IBS. Disease-related expectations did not differ between groups. Patients with IBS showed low satisfaction with care and felt less informed about their disease than patients with UC. Both groups indicated a high motivation of participating in a psychological support program and named illness-related expectations and illness anxiety as important components of such.
The results confirm an increased need for psychosocial support and the relevance of disease-related expectations and anxiety for both diseases. Differences in symptom perception and care satisfaction indicate the importance of disease-specific elements in psychosocial therapy programs.
The results demonstrate the high need for psychosocial support of patients with UC and IBS and indicate the feasibility of a psychosocial therapy program.
溃疡性结肠炎（UC）和肠易激综合征（IBS）与较高的躯体症状负担、生活质量下降及心理困扰增加有关。主观负担、许多患者的愿望以及心理过程在症状感知中的参与证明了心理社会支持服务的发展是合理的。我们旨在评估此类服务的需求、内容和可行性。我们纳入了UC和IBS患者，以确定心理社会干预的疾病特异性和跨诊断方面。
我们使用标准化访谈指南对成年UC或IBS患者进行电话访谈。我们使用数字评分量表和开放式问题来评估疾病负担和应对方式、与疾病相关的期望和焦虑、对护理的满意度、支持和信息需求以及对支持项目的偏好。我们计算了定量变量的描述性指标以及特定诊断组的比较。对开放式问题的回答根据参与者的陈述进行总结和计数。
35名患者（UC：15名；IBS：20名）参与（年龄：40.80岁，标准差14.56；71%为女性）。两组患者的疾病负担均处于中等水平，IBS患者的负担率更高。两组均报告了与疾病相关的焦虑，IBS患者的焦虑水平更高。两组之间与疾病相关的期望没有差异。IBS患者对护理的满意度较低，并且比UC患者感觉对自己的疾病了解更少。两组均表示有很高的积极性参与心理支持项目，并将与疾病相关的期望和疾病焦虑视为其中的重要组成部分。
结果证实了对心理社会支持的需求增加，以及与疾病相关的期望和焦虑对这两种疾病的相关性。症状感知和护理满意度的差异表明了心理社会治疗项目中疾病特异性因素的重要性。
结果表明UC和IBS患者对心理社会支持的需求很高，并表明心理社会治疗项目的可行性。
