“没有人能替我承受压力”：一项关于癌症患者的伴侣在工作和健康方面的经历的定性研究。
'Nobody can take the stress away from me': a qualitative study on experiences of partners of patients with cancer regarding their work and health.
机构信息
Amsterdam UMC location Vrije Universiteit, Amsterdam, Department of Public and Occupational Health, Amsterdam, the Netherlands.
Amsterdam Public Health Research Institute, Societal Participation and Health, Amsterdam, the Netherlands.
出版信息
Disabil Rehabil. 2023 May;45(10):1696-1704. doi: 10.1080/09638288.2022.2074547. Epub 2022 May 23.
PURPOSE
To explore experienced health- and work-related problems of partners of patients with cancer, and their needs for support.
MATERIALS AND METHODS
Semi-structured interviews were conducted with Dutch partners of patients with cancer. Interviews were transcribed verbatim. Data were analysed thematically, following the six steps of Braun & Clarke.
RESULTS
Of 20 included partners (mean age: 50 years [31-63]), 60% was female. Five themes consistently emerged from the data: 1) overwhelming chaos calls for taking control; 2) impact of prolonged stress; 3) flexibility and support of the employer are crucial; 4) coping with family and friends is a delicate matter; and 5) support from healthcare professionals is needed, but not a given.
CONCLUSIONS
Findings from this study show that the burden on partners of patients with cancer is substantial and cannot be overlooked. The state of survival mode that partners get into during the diagnosis, treatment and follow-up of their loved ones can have various implications on their physical and mental health, and work situation. Given this high burden and as legislation for care leave from work and (health care) support for partners appear to be insufficiently in place in the Dutch context, there is a need for better-targeted support for partners of patients with cancer. Implications for RehabilitationThe survival mode that partners of patients with cancer get into during the diagnosis, treatment and follow-up of their loved ones can have various implications on their physical and mental health, and work situation.This study showed that the burden on partners of patients with cancer is substantial and cannot be overlooked.Given this high burden and because legislation for care leave from work and (health care) support for partners appears to be insufficiently in place in the Dutch context, there is a need for better-targeted support for partners of patients with cancer.
目的
探讨癌症患者伴侣的健康相关和工作相关问题及需求。
材料与方法
对荷兰癌症患者的伴侣进行半结构式访谈。对访谈进行逐字转录。采用 Braun & Clarke 的六步分析法对数据进行主题分析。
结果
20 名纳入的伴侣（平均年龄：50 岁[31-63]）中，60%为女性。数据中一致出现了 5 个主题：1）压倒性的混乱需要控制；2）长期压力的影响；3）雇主的灵活性和支持至关重要；4）与家人和朋友相处是一件微妙的事情；5）需要但不一定能得到医疗保健专业人员的支持。
结论
本研究结果表明，癌症患者伴侣的负担很大，不容忽视。在亲人诊断、治疗和随访期间，伴侣进入生存模式，这可能对他们的身心健康和工作状况产生各种影响。鉴于这种高负担，并且由于荷兰的工作休假和（医疗保健）伴侣支持立法似乎不足，癌症患者伴侣需要更有针对性的支持。
对康复的意义
癌症患者伴侣在亲人诊断、治疗和随访期间进入的生存模式，可能对他们的身心健康和工作状况产生各种影响。
本研究表明，癌症患者伴侣的负担很大，不容忽视。鉴于这种高负担，并且由于荷兰的工作休假和（医疗保健）伴侣支持立法似乎不足，癌症患者伴侣需要更有针对性的支持。
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