Department of Information Technology, Uppsala University, Sweden.
Department of Immunology, Uppsala University, Sweden.
Stud Health Technol Inform. 2022 May 25;294:214-218. doi: 10.3233/SHTI220440.
Informal Caregivers such as a spouse, other close relatives or friends of cancer patients can play an essential role in home-based treatment and care. However, the informal caregivers might not be prepared for this responsibility, and they might have several unmet requirements for taking care of patients in the home environment. The informal caregivers' physical, social and psychological health is also profoundly affected due to the health conditions of their relatives. We propose a User-centred Positive Design as a hybrid framework by merging the traditional User-cantered design and positive design frameworks to enhance the informal caregivers' subjective well-being. Our ongoing project (Carer-eSupport) will be used as a case study, and its main objective is to co-create and evaluate a web-based support system for informal caregivers of people with cancer. The proposed framework can be used for the design and development of health information systems with a special focus on users' wellbeing and positive emotions.
非专业医护人员(如癌症患者的配偶、其他近亲或朋友)可以在居家治疗和护理中发挥重要作用。然而,这些非专业医护人员可能没有做好承担这一责任的准备,他们在居家环境中照顾患者可能存在多方面的未满足需求。由于亲属的健康状况,非专业医护人员的身心健康也受到了极大影响。我们提出了一种以用户为中心的正向设计,将传统的以用户为中心的设计和正向设计框架相结合,以提高非专业医护人员的主观幸福感。我们正在进行的项目(Carer-eSupport)将被用作案例研究,其主要目标是共同创建和评估一个针对癌症患者非专业医护人员的基于网络的支持系统。所提出的框架可用于设计和开发注重用户幸福感和积极情绪的健康信息系统。