College of Nursing, Gyeongsang National University, Jinju 52727, Korea.
College of Nursing, Gerontologic Health Research Center in Institute of Health Science, Gyeongsang National University, Jinju 52727, Korea.
Int J Environ Res Public Health. 2022 May 12;19(10):5900. doi: 10.3390/ijerph19105900.
This study clarifies the concept of illness intrusiveness in patients with a chronic disease using the hybrid model method. To clarify the dimension, attributes, and definition of illness intrusiveness in chronic disease, three phases of analysis were conducted. In the theoretical phase, a working definition was devised through a systematic review. In the fieldwork phase, individual in-depth interviews were conducted with nine participants with chronic diseases. In the final analytic phase, the results were integrated through comparison and review. There are four domains and eleven attributes of illness intrusiveness in chronic disease. The domains include physical, psychological, social/contextual, and spiritual. The physical domain consists of four attributes: pain, fatigue, physical malfunction, and change of body image. The psychological domain consists of three attributes: psychological weakness, uncertainty, and stigma. The social/contextual domain is made up of three attributes: withdrawal of role play, limit of daily life, and burden of changing health habits. Finally, the spiritual domain had one attribute: unstable spiritual state. Thus, based on the study findings, it is necessary to develop a suitable illness intrusiveness in chronic disease assessment scale to assess chronic disease patients.
本研究采用混合模型方法，阐明了慢性病患者疾病侵扰的概念。为了阐明慢性病中疾病侵扰的维度、属性和定义，进行了三个阶段的分析。在理论阶段，通过系统评价设计了一个工作定义。在实地工作阶段，对 9 名慢性病患者进行了个人深入访谈。在最后的分析阶段，通过比较和审查整合了结果。慢性病中的疾病侵扰有四个领域和十一个属性。这些领域包括身体、心理、社会/环境和精神。身体领域包括四个属性：疼痛、疲劳、身体机能障碍和身体形象改变。心理领域包括三个属性：心理脆弱、不确定性和污名化。社会/环境领域由三个属性组成：角色退缩、日常生活受限和改变健康习惯的负担。最后，精神领域有一个属性：不稳定的精神状态。因此，根据研究结果，有必要开发一种合适的慢性病疾病侵扰评估量表来评估慢性病患者。
