Department of Psychology, Stellenbosch University, Private Bag X1, Matieland, Stellenbosch 7602, South Africa.
Department of Psychology, Stellenbosch University, Private Bag X1, Matieland, Stellenbosch 7602, South Africa.
Seizure. 2022 Jul;99:131-152. doi: 10.1016/j.seizure.2022.05.016. Epub 2022 May 19.
The purpose of this scoping review was to explore the extent, range and nature of knowledge on stigma in functional seizures (FS).
This scoping review was conducted in accordance with the Joanna Briggs Institute Manual for Evidence Synthesis (JBIMES) guidelines and the five-step framework by Arksey and O'Malley. We searched for data sources written in English using MEDLINE, Scopus, EBSCOhost, Ovid, PubMed, Science Direct, Web of Science, Wiley Online Library, Microsoft Academic, Google Scholar, as well as grey literature sources, with no date limitations up to September 2021. The extracted data were analysed using basic frequency counts and thematic synthesis.
The systematic search yielded a set of 988 potentially relevant data sources, of which 70 met the inclusion criteria. The retrieved sources reflected data from 85 countries and 5949 study participants. The thematic synthesis highlighted the prevalence of FS stigma, as well as its potential origins, context and impact on patients and families. The majority of studies were conducted in healthcare settings with healthcare providers, with fewer data sources reporting on family, patient, and broader society perspectives relating to FS stigma.
Our scoping review suggests that FS stigma is prevalent but remains understudied. We need more research with a specific focus on stigma in FS, and factors that contribute to FS stigma (e.g. culture and context, naming of the condition), as well as accessible interventions and guidelines addressing FS stigma through education and training. Supportive attitudes and knowledge appear to be protective factors against FS stigma.
本范围综述旨在探讨功能性癫痫（FS）污名的程度、范围和性质。
本范围综述按照乔安娜·布里格斯研究所证据综合手册（JBIMES）指南和阿特斯基和奥马利的五步框架进行。我们使用 MEDLINE、Scopus、EBSCOhost、Ovid、PubMed、Science Direct、Web of Science、Wiley Online Library、Microsoft Academic、Google Scholar 以及无时间限制的灰色文献来源，以英文编写的数据源进行了搜索，截至 2021 年 9 月。使用基本频率计数和主题综合分析提取的数据。
系统搜索产生了一组 988 个潜在相关数据源，其中 70 个符合纳入标准。检索到的来源反映了来自 85 个国家和 5949 名研究参与者的数据。主题综合突出了 FS 污名的普遍性，以及其潜在的起源、背景和对患者及其家庭的影响。大多数研究是在医疗保健环境中与医疗保健提供者进行的，只有少数数据源报告了与 FS 污名相关的家庭、患者和更广泛的社会观点。
我们的范围综述表明，FS 污名普遍存在，但仍未得到充分研究。我们需要更多针对 FS 污名的研究，以及导致 FS 污名的因素（例如文化和背景、疾病的命名），以及通过教育和培训解决 FS 污名的可及干预措施和指南。支持性态度和知识似乎是预防 FS 污名的保护因素。
