Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.
Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.
Health Promot J Austr. 2022 Oct;33 Suppl 1(Suppl 1):222-234. doi: 10.1002/hpja.624. Epub 2022 Jun 17.
The lack of evidence on the priorities of carers and their Aboriginal and Torres Strait Islander children undermines decisions to improve participant experiences and engagement.
This study describes carer and staff perspectives on the aspects of health services delivery that are important to carers and children.
Nineteen carers of Aboriginal and Torres Strait Islander children and 17 staff who work at child health programs across two urban Aboriginal Community Controlled Health Services (ACCHSs) and affiliate organisations in New South Wales, Australia participated in semi-structured interviews. We used thematic analysis to analyse the data.
We identified five themes: valuing relational communication (building trust by keeping relationships at the centre, empowered to optimise child's development, feeling heard and known); confidence in provider's clinical and interpersonal skills (certain that the health issue will be resolved, engaging with the child to allay fears, facilitating timely health care); finding comfort and security in community embedded services (safety and acceptance in the familiar, strengthening child's connection to culture); support to access and navigate health services (accessible information appropriately presented, easy and flexible scheduling, easing the shame of financial hardship); sustaining service use (fulfilling expectations for service standards, demonstrating commitment through ongoing programs, clarity of benefits).
Carers and staff reported that approaches to communication, the content of that communication, how access is facilitated and the service environment managed influences their decisions to interact with health services. With these data decision-makers can better focus resources to improve experiences with their services.
缺乏有关照顾者及其澳大拉西亚裔和托雷斯海峡岛民儿童优先事项的证据，这使得改善参与者体验和参与度的决策受到阻碍。
本研究描述了照顾者和工作人员对健康服务提供方面的看法，这些方面对照顾者和儿童很重要。
19 名澳大拉西亚裔和托雷斯海峡岛民儿童的照顾者以及在澳大利亚新南威尔士州两个城市的原住民社区控制的健康服务（ACCHS）和附属组织工作的 17 名工作人员参加了半结构化访谈。我们使用主题分析来分析数据。
我们确定了五个主题：重视关系沟通（通过将关系置于中心位置建立信任，使儿童的发展得到优化，让他们感到被倾听和了解）；对提供者的临床和人际交往技能有信心（确信健康问题将得到解决，与孩子接触以减轻恐惧，促进及时的医疗保健）；在社区嵌入式服务中找到舒适和安全（在熟悉的环境中感到安全和被接受，加强孩子对文化的联系）；支持获取和导航医疗服务（提供易于理解的、适当呈现的可及信息，灵活的预约安排，减轻因经济困难而产生的羞耻感）；维持服务使用（满足对服务标准的期望，通过持续的项目展示承诺，明确受益）。
照顾者和工作人员报告说，沟通方式、沟通内容、如何促进获取以及服务环境的管理会影响他们与医疗服务互动的决策。有了这些数据，决策者可以更好地集中资源，改善他们对服务的体验。
