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改善正在服用口服抗癌药物的患者的支持性护理。

To Improve Supportive Care for Patients Taking Oral Anticancer Agents.

机构信息

Department of Informatics, University of California, Irvine, CA, USA.

School of Computing and Information Technology, University of Wollongong, Wollongong, NSW, Australia.

出版信息

Stud Health Technol Inform. 2022 Jun 6;290:547-551. doi: 10.3233/SHTI220137.

Abstract

Oral anticancer agents (OAA) are increasingly prescribed to treat cancer because they are flexible and convenient to use. However, managing complex OAA regimens and life-threatening toxicities at home can be challenging for patients and their caregivers. It is urgent to better understand the supportive care needs for OAA and develop novel approaches to facilitating self-management and communicating about OAA. Guided by the chronic care model (CCM), we conducted a grounded theory-based study to analyze OAA-related online discussions and potential mHealth interventions. We found that patients and caregivers commonly used the online community to share personal experiences and concerns, exchange emotional and informational support, identify relevant resources, and obtain benefits of peer coaching. The findings deepen the understanding of the needs for OAA self-management and mHealth interventions, contributing to the development of mHealth models to enhance supportive care and improve communication among peer patients and between patients and providers.

摘要

口服抗癌药物(OAA)因其使用灵活方便而被越来越多地用于治疗癌症。然而,患者及其护理人员在家中管理复杂的 OAA 方案和危及生命的毒性可能具有挑战性。迫切需要更好地了解 OAA 的支持性护理需求,并开发新的方法来促进自我管理和关于 OAA 的沟通。本研究以慢性病护理模式(CCM)为指导,对 OAA 相关的在线讨论和潜在的移动医疗干预措施进行了基于扎根理论的分析。我们发现,患者和护理人员通常使用在线社区分享个人经验和关注点,交流情感和信息支持,识别相关资源,并获得同伴指导的好处。研究结果深化了对 OAA 自我管理和移动医疗干预措施需求的理解,有助于开发移动医疗模型,以加强支持性护理,并改善同伴患者之间以及患者与提供者之间的沟通。

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