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圣卢西亚的癌症幸存者非常重视社会支持:资源匮乏社区癌症控制的考虑因素。

Cancer Survivors in Saint Lucia Deeply Value Social Support: Considerations for Cancer Control in Under-Resourced Communities.

机构信息

Vaughan Arthur Lewis Institute for Research and Innovation (VALIRI), Sir Arthur Lewis Community College, Morne Fortune, Castries LC06 101, Saint Lucia.

Univ Rennes, Inserm, EHESP, IRSET (Institut de Recherche en Santé, Environnement et Travail)-UMR_S 1085, 97100 Pointe-à-Pitre, France.

出版信息

Int J Environ Res Public Health. 2022 May 27;19(11):6531. doi: 10.3390/ijerph19116531.

Abstract

Understanding the views of cancer survivors on their experience is important for informing community-based interventions. We studied, for the first time, the views of cancer survivors residing in Saint Lucia on their overall care experience. We used interview data from a cohort of adult cancer survivors from Saint Lucia between 2019 and 2020. We performed a thematic analysis to derive themes from codes. Forty-four survivors provided responses to at least one of the three questions. The majority of survivors were black, female and diagnosed with breast cancer. Survivors were interviewed on average five years after diagnosis. Four common themes emerged; "Availability of support groups", "Importance of support from family and friends", "Access to finances" and "Health education and patient navigation". Travel overseas for health services was common among survivors. Survivors expressed emotional distress during travel due to isolation from family and local providers. This is typical among island populations and is distinct from existing patient frameworks. Survivors also suggested that networking amongst providers and interventions assisted families of cancer survivors. Although tertiary care services are limited, we showed that survivors deeply value and depend on their inter-personal relationships during care. Interventions aimed at strengthening the inter-personal environment of survivors are warranted.

摘要

了解癌症幸存者对其经历的看法对于为社区为基础的干预提供信息很重要。我们首次研究了居住在圣卢西亚的癌症幸存者对其整体护理体验的看法。我们使用了 2019 年至 2020 年期间来自圣卢西亚的一组成年癌症幸存者的访谈数据。我们进行了主题分析,从代码中得出主题。44 名幸存者对至少三个问题中的一个做出了回应。大多数幸存者是黑人、女性,被诊断患有乳腺癌。幸存者的平均诊断时间为五年。出现了四个共同的主题:“支持小组的可用性”、“来自家人和朋友的支持的重要性”、“获得资金的机会”和“健康教育和患者导航”。海外就医在幸存者中很常见。由于与家人和当地提供者隔离,幸存者在旅行期间感到情绪困扰。这在岛屿人群中很常见,与现有的患者框架不同。幸存者还表示,提供者之间的网络联系和干预措施有助于癌症幸存者的家庭。尽管三级保健服务有限,但我们表明,幸存者在护理期间非常重视并依赖于他们的人际关系。有必要采取干预措施来加强幸存者的人际关系环境。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8390/9180699/93a291d1a73c/ijerph-19-06531-g001.jpg

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