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儿童青少年特发性关节炎的心理倾向。

Psychological tendencies of children with juvenile idiopathic arthritis.

机构信息

School of Psychological Sciences, Tel-Aviv University, Tel Aviv, Israel.

The Psycho-Oncology Research Center, The Chaim Sheba Medical Center, Ramat Gan, Israel.

出版信息

Scand J Psychol. 2022 Dec;63(6):624-633. doi: 10.1111/sjop.12839. Epub 2022 Jun 10.

DOI:10.1111/sjop.12839
PMID:35689406
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9796744/
Abstract

A bulk of studies showed an association between stressful events and juvenile idiopathic arthritis (JIA) but failed to identify specific psychological tendencies that contribute to the patients' vulnerability to stress. The purpose of this paper is to identify psychological tendencies specific to JIA that would unravel characteristic sources of stress. The study is based on the cognitive orientation model of health, which enables us to identify these kinds of tendencies in terms of four belief types (beliefs about self, general beliefs, beliefs about norms, and goals) that refer to specific themes. This is a case-control-cohort study that included a sample of 36 patients (mean age = 12.44 years, SD = 2.97, 21 females) and 41 matched controls (mean age = 13.15 years, SD = 2.01, 22 females). The JIA cognitive-orientation questionnaire was administered, and relevant medical parameters were recorded. The belief types differentiated between the two groups, and the patients were characterized using six themes. Examples of the themes are being over-sensitive, striving for success, and not fulfilling duties well. The themes differentiated between the participants' groups with an accuracy of 89.1%. The likelihood of the patients being characterized by the themes is 3.24-9.35 times more than the controls. The psychological tendencies of JIA were discussed as generators of stress (e.g., being over-sensitive) and cognitive conflicts (e.g., the contradiction between striving for success versus not fulfilling duties well). Also, the suggested reflections of these tendencies in the health workers' and patients' relationships, such as egalitarian interaction, and non-formal communication style, were described.

摘要

大量研究表明,应激事件与青少年特发性关节炎(JIA)之间存在关联,但未能确定导致患者易受压力影响的特定心理倾向。本文旨在确定与 JIA 相关的特定心理倾向,以揭示其特征性的压力源。该研究基于健康的认知导向模型,使我们能够根据四种信念类型(关于自我、一般信念、规范信念和目标信念)来识别这些倾向,这些信念类型涉及特定主题。这是一项病例对照队列研究,包括 36 名患者(平均年龄 12.44 岁,标准差 2.97,21 名女性)和 41 名匹配对照(平均年龄 13.15 岁,标准差 2.01,22 名女性)。进行了 JIA 认知倾向问卷评估,并记录了相关的医学参数。该研究确定了两组之间的信念类型,并用六个主题对患者进行了特征描述。这些主题的示例包括过度敏感、追求成功和未能很好地履行职责。主题能够以 89.1%的准确率区分参与者群体。与对照组相比,患者具有这些主题特征的可能性是对照组的 3.24-9.35 倍。讨论了 JIA 的心理倾向是如何产生压力的(例如,过度敏感)和认知冲突(例如,追求成功与未能很好地履行职责之间的矛盾)。还描述了这些倾向在卫生工作者和患者关系中的反映,例如平等互动和非正规沟通方式。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8b5c/9796744/1c84902e9076/SJOP-63-624-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8b5c/9796744/1c84902e9076/SJOP-63-624-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8b5c/9796744/1c84902e9076/SJOP-63-624-g001.jpg

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本文引用的文献

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Juvenile idiopathic arthritis.幼年特发性关节炎
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Social Support, Caregivers, and Chronic Kidney Disease.社会支持、照顾者与慢性肾脏病
Semin Nephrol. 2021 Nov;41(6):574-579. doi: 10.1016/j.semnephrol.2021.10.009.
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Epidemiology and demographics of juvenile idiopathic arthritis in Africa and Middle East.非洲和中东地区青少年特发性关节炎的流行病学和人口统计学。
Pediatr Rheumatol Online J. 2021 Dec 2;19(1):166. doi: 10.1186/s12969-021-00650-x.
4
Motivational disposition towards psychological characteristics of israeli children with inflammatory bowel diseases: A case-control study.炎症性肠病患儿心理特征的动机倾向:病例对照研究。
J Pediatr Nurs. 2022 Jan-Feb;62:e131-e138. doi: 10.1016/j.pedn.2021.08.020. Epub 2021 Aug 28.
5
Definition of Personalized Medicine and Targeted Therapies: Does Medical Familiarity Matter?个性化医疗与靶向治疗的定义:医学熟悉度重要吗?
J Pers Med. 2021 Jan 4;11(1):26. doi: 10.3390/jpm11010026.
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The personalized medicine discourse: archaeology and genealogy.个性化医学话语:考古学与系谱学。
Med Health Care Philos. 2021 Jun;24(2):247-253. doi: 10.1007/s11019-020-09997-6. Epub 2021 Jan 3.
7
Adverse Childhood Experiences Are Associated with Childhood-Onset Arthritis in a National Sample of US Youth: An Analysis of the 2016 National Survey of Children's Health.不良童年经历与美国青少年全国样本中的儿童期关节炎相关:对2016年全国儿童健康调查的分析。
J Pediatr. 2020 Nov;226:243-250.e2. doi: 10.1016/j.jpeds.2020.06.046. Epub 2020 Jun 15.
8
Review of environmental factors and juvenile idiopathic arthritis.环境因素与青少年特发性关节炎综述
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Child and Family Adaptation to Juvenile Idiopathic Arthritis-A Systematic Review of the Role of Resilience Resources and Mechanisms.儿童及家庭对幼年特发性关节炎的适应——复原力资源与机制作用的系统评价
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