Department of Oncology and Metabolism, The University of Sheffield, Sheffield, UK
Department of Oncology and Metabolism, The University of Sheffield, Sheffield, UK.
BMJ Open. 2022 Jun 13;12(6):e062500. doi: 10.1136/bmjopen-2022-062500.
More people are living with multimorbidity, defined as two or more long-term physical or mental health conditions. Multimorbidity is associated with poor quality of life and high treatment burden. Palliative care identification tools have been developed for use in primary care to seek out patients who could benefit from a palliative approach to their care. There has been little evaluative research on such tools; patient perspectives on the process of identifying their palliative care needs is a significant gap. The aim of this research is to provide new understanding into patient perspectives of the experience of having their palliative care needs identified, and the impact on their healthcare.
This qualitative study will employ semistructured interviews to elicit the views of participants. We will purposively sample 10-12 adults with advanced serious illness who have been identified by their primary care team as having palliative care needs, and/or are receiving care from specialist palliative care services. A family member or carer may be included in an interview at the participant's request. A descriptive, thematic analysis will be carried out using the data analysis software NVivo.
Ethical approval has been granted by the North of Scotland Research Ethics Committee. Study findings will be disseminated in peer-reviewed journals and through conference presentations. Other activities include the development of patient-centred outcomes for clinical practice and policy in relation to the use of palliative care identification tools.
National Institute for Health Research (NIHR) Clinical Studies Portfolio, UK Clinical Research Network (UKCRN) Study number 51296.
有更多人患有多种慢性疾病，其定义为两种或更多种长期的身体或心理健康状况。多种慢性疾病与生活质量差和治疗负担高有关。姑息治疗识别工具已被开发用于初级保健，以寻找可能受益于姑息治疗方法的患者。对于这些工具，很少有评估性研究；患者对确定其姑息治疗需求过程的看法是一个重大空白。本研究的目的是提供对患者对确定其姑息治疗需求的体验以及对其医疗保健的影响的新理解。
这项定性研究将采用半结构式访谈来引出参与者的观点。我们将有目的地选择 10-12 名患有晚期严重疾病的成年人，他们的初级保健团队已经确定他们有姑息治疗需求，和/或正在接受专科姑息治疗服务的照顾。应参与者的要求，可包括一名家庭成员或护理人员参加访谈。将使用数据分析软件 NVivo 对数据进行描述性、主题分析。
已获得苏格兰北部研究伦理委员会的伦理批准。研究结果将在同行评议的期刊和会议演讲中发表。其他活动包括制定与姑息治疗识别工具的使用有关的以患者为中心的临床实践和政策结果。
英国国民健康保险制度（NHS）临床研究组合，英国临床研究网络（UKCRN）研究编号 51296。
