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Sociodemographic, Attitudinal, and Behavioral Correlates of Using Nutrition, Weight Loss, and Fitness Websites: An Online Survey.使用营养、减肥和健身网站的社会人口学、态度及行为相关因素:一项在线调查
J Med Internet Res. 2019 Apr 4;21(4):e10189. doi: 10.2196/10189.
2
Living with someone with an eating disorder: factors affecting the caregivers' burden.与饮食失调者共同生活:影响照料者负担的因素
Eat Weight Disord. 2019 Dec;24(6):1209-1214. doi: 10.1007/s40519-018-0480-7. Epub 2018 Jan 24.
3
Defining Information Quality Into Health Websites: A Conceptual Framework of Health Website Information Quality for Educated Young Adults.界定健康网站的信息质量:针对受过教育的年轻人的健康网站信息质量概念框架
JMIR Hum Factors. 2017 Oct 6;4(4):e25. doi: 10.2196/humanfactors.6455.
4
Knowledge, Attitudes and Challenges of Healthcare Professionals Managing People With Eating Disorders: A Literature Review.医疗保健专业人员对饮食失调患者的管理:知识、态度与挑战的文献综述
Arch Psychiatr Nurs. 2017 Feb;31(1):125-136. doi: 10.1016/j.apnu.2016.09.002. Epub 2016 Sep 7.
5
Central Coherence in Eating Disorders: A Synthesis of Studies Using the Rey Osterrieth Complex Figure Test.饮食失调中的中央连贯性:使用雷-奥斯特里茨复杂图形测试的研究综述
PLoS One. 2016 Nov 2;11(11):e0165467. doi: 10.1371/journal.pone.0165467. eCollection 2016.
6
'Everyone here wants everyone else to get better': The role of social identity in eating disorder recovery.“这里的每个人都希望其他人能变得更好”:社会认同在饮食失调康复中的作用。
Br J Soc Psychol. 2016 Dec;55(4):662-680. doi: 10.1111/bjso.12161. Epub 2016 Sep 26.
7
Understanding online health information: Evaluation, tools, and strategies.理解在线健康信息:评估、工具与策略。
Patient Educ Couns. 2017 Feb;100(2):183-189. doi: 10.1016/j.pec.2016.08.028. Epub 2016 Aug 26.
8
A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder.神经性厌食症、神经性贪食症和暴饮暴食症与健康相关的生活质量及经济负担的系统评价。
Eat Weight Disord. 2016 Sep;21(3):353-364. doi: 10.1007/s40519-016-0264-x. Epub 2016 Mar 4.
9
Prevalence, incidence, and natural course of anorexia and bulimia nervosa among adolescents and young adults.青少年和青年中神经性厌食症和神经性贪食症的患病率、发病率及自然病程。
Eur Child Adolesc Psychiatry. 2016 Aug;25(8):903-18. doi: 10.1007/s00787-015-0808-z. Epub 2016 Jan 11.
10
Psychiatric comorbidity in women and men with eating disorders results from a large clinical database.精神障碍共病在患有进食障碍的女性和男性中源于大型临床数据库。
Psychiatry Res. 2015 Dec 15;230(2):294-9. doi: 10.1016/j.psychres.2015.09.008. Epub 2015 Sep 15.

从饮食失调症女性的角度评估基于网络的健康信息:主题分析。

Evaluation of Web-Based Health Information From the Perspective of Women With Eating Disorders: Thematic Analysis.

机构信息

Interdisciplinary Research Team on Internet and Society, Faculty of Social Studies, Masaryk University, Brno, Czech Republic.

出版信息

J Med Internet Res. 2022 Jun 13;24(6):e31148. doi: 10.2196/31148.

DOI:10.2196/31148
PMID:35699984
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9237763/
Abstract

BACKGROUND

Users with experience of eating disorders use the internet as a source of information, whether for prorecovery activities (such as web-based treatment, looking for information, support, and sharing) or activities that promote eating disorder behavior as a desirable lifestyle choice (such as pro-eating disorder communities and reading and creating pro-eating disorder posts). Their assessment of web-based eating disorder-related information is crucial for understanding the context of the illness and for health professionals and their web-based interventions.

OBJECTIVE

This study aimed to understand the criteria young women with the experience of eating disorders use in evaluating eating disorder-related web-based information and what eating disorder-related characteristics of these women are involved in their evaluation.

METHODS

We analyzed 30 semistructured individual interviews with Czech women aged 16 to 28 years with past or present eating disorder experience using a qualitative approach. Thematic analysis was adopted as an analytical tool.

RESULTS

The specifics of eating disorder phases (the disorder stage and the treatment process) emerged as important aspects in the process of information assessment. Other specific characteristics of respondents (eg, motivation, abilities, and resources) addressed how the respondents arrived at certain web-based information and how they evaluated it. In addition, the respondents described some content cues as features of information (eg, novelty and social information pooling). Another finding is that other users' attitudes, experiences, activities, and personal features are involved in the information evaluation of these users and the information presented by them. Finally, the respondents evaluated the websites' visual look and graphic components.

CONCLUSIONS

This study shows that web-based information evaluation reported by women with experience of eating disorders is a complex process. The assessment is influenced by current personal characteristics related to the illness (mainly the motivation for maintaining or curing the eating disorder) using cues associated with information content, other users, and website look. The study findings have important implications for health professionals, who should ask their clients questions about web-based communities and their needs to understand what information and sources they choose.

摘要

背景

有进食障碍经历的用户会将互联网作为信息来源,无论是用于促进康复的活动(如基于网络的治疗、查找信息、支持和分享),还是促进进食障碍行为成为理想生活方式选择的活动(如支持进食障碍的社区以及阅读和创建支持进食障碍的帖子)。他们对基于网络的与饮食失调相关的信息的评估对于了解疾病的背景以及对于卫生专业人员及其基于网络的干预措施至关重要。

目的

本研究旨在了解有进食障碍经历的年轻女性在评估与饮食失调相关的网络信息时使用的标准,以及这些女性在评估中涉及的与饮食失调相关的哪些特征。

方法

我们采用定性方法分析了 30 名年龄在 16 至 28 岁之间、有过去或现在进食障碍经历的捷克女性的半结构化个体访谈。采用主题分析作为分析工具。

结果

饮食障碍阶段的特殊性(疾病阶段和治疗过程)是信息评估过程中的重要方面。受访者的其他特定特征(例如动机、能力和资源)涉及受访者如何获得某些基于网络的信息以及如何评估它。此外,受访者描述了一些内容线索作为信息的特征(例如新颖性和社会信息汇集)。另一个发现是,其他用户的态度、经验、活动和个人特征涉及这些用户对信息的评估以及他们所呈现的信息。最后,受访者评估了网站的视觉外观和图形组件。

结论

本研究表明,有进食障碍经历的女性报告的基于网络的信息评估是一个复杂的过程。评估受到与疾病相关的当前个人特征(主要是维持或治愈进食障碍的动机)的影响,这些特征与信息内容、其他用户和网站外观相关的线索有关。研究结果对卫生专业人员具有重要意义,他们应该向客户询问有关基于网络的社区及其需求的问题,以了解他们选择哪些信息和来源。