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“这是关于分享一个时刻”:家长对与中重度智力残疾自闭症儿童在家中阅读的看法和体验。

"It's about sharing a moment": Parents' views and experiences of home reading with their autistic children with moderate-to-severe intellectual disabilities.

机构信息

Enfield Advisory Service for Autism, Enfield, United Kingdom.

UCL Institute of Education, University College London, United Kingdom.

出版信息

Res Dev Disabil. 2022 Sep;128:104289. doi: 10.1016/j.ridd.2022.104289. Epub 2022 Jun 24.

Abstract

BACKGROUND

The home literacy environment plays a critical role in the development of children's literacy and language development. Little is known, however, about the home literacy environment of autistic children, especially those with moderate-to-severe intellectual disabilities.

AIMS

The current study used a sequential mixed-methods design to understand how parents attempt to engage their autistic children in reading activities and support them in learning to read.

METHODS AND PROCEDURE

First, 63 parents (53 mothers) whose autistic children attended an autism-specific special school completed a bespoke questionnaire about the home literacy environments for their children (n = 69, age range = 3-11 years, 61 boys, 8 girls). Second, a subsample of parents (n = 19, 15 mothers) participated in focus groups to understand in-depth their views and experiences of home reading with their children (n = 20, age range = 3-11 years, 19 boys, 1 girl). We used reflexive thematic analysis to analyse the focus group data.

OUTCOMES AND RESULTS

Across questionnaire and focus group methods, parents were united in considering reading to be an important life skill, a sentiment that was reflected both by their often literacy-rich homes and the ingenuity in their efforts to engage their children in shared home-reading activities - even when such engagement could be challenging. They also emphasised, however, the importance of valuing these activities as an opportunity to "catch a moment" with their child.

CONCLUSIONS AND IMPLICATIONS

Parents and teachers should work together to identify ways to enhance autistic children's engagement in shared home-reading activities, listening to and learning from each other's experiences and expertise, and to show what is possible within each learning context.

摘要

背景

家庭读写环境对儿童读写和语言发展起着至关重要的作用。然而,对于自闭症儿童,尤其是中重度智力残疾儿童的家庭读写环境,我们知之甚少。

目的

本研究采用顺序混合方法设计,旨在了解父母如何尝试让他们的自闭症儿童参与阅读活动,并支持他们学习阅读。

方法和程序

首先,63 名(53 名母亲)自闭症儿童就读于自闭症特殊学校的家长完成了一份关于孩子家庭读写环境的定制问卷(n=69,年龄范围为 3-11 岁,61 名男孩,8 名女孩)。其次,一个家长子样本(n=19,15 名母亲)参加了焦点小组,以深入了解他们与孩子在家阅读的看法和经验(n=20,年龄范围为 3-11 岁,19 名男孩,1 名女孩)。我们使用反思性主题分析对焦点小组数据进行分析。

结果

通过问卷和焦点小组两种方法,家长们一致认为阅读是一项重要的生活技能,这一观点反映在他们通常丰富的家庭读写环境以及他们在努力让孩子参与家庭共同阅读活动方面的创造力上——即使这种参与可能具有挑战性。然而,他们也强调了重视这些活动的重要性,将其视为与孩子“共度一刻”的机会。

结论和意义

家长和教师应共同努力,寻找方法来增强自闭症儿童对家庭共同阅读活动的参与度,相互倾听和学习彼此的经验和专业知识,并在每个学习环境中展示可能的情况。

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