Helen M. Bourke-Taylor, PhD, is Associate Professor, Occupational Therapy Department, School of Primary and Allied Health Care, Faculty of Medicine, Nursing and Health Sciences, Monash University, Peninsula Campus, Frankston, Victoria, Australia;
Kahli S. Joyce, BOT, is Research Assistant, Occupational Therapy Department, School of Primary and Allied Health Care, Faculty of Medicine, Nursing and Health Sciences, Monash University, Peninsula Campus, Frankston, Victoria, Australia.
Am J Occup Ther. 2022 Jul 1;76(4). doi: 10.5014/ajot.2022.048009.
Parental perceptions and experiences of community inclusion influence the community participation of families and children with a disability, although no measurement tools exist.
To describe the initial development of the My Family's Accessibility and Community Engagement (MyFACE) tool.
MyFACE measures parental perceptions of community accessibility and engagement of families raising a child with a disability. Items represent common community activities rated on a 5-point Likert scale. COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) guided content validity, construct validity, and internal reliability testing.
Australia.
Seventy-seven mothers of children with a disability provided data, with 69 complete data sets.
The nine-item MyFACE had excellent content and construct validity and good internal reliability (Cronbach's α = .85). Hypothesis testing correlated MyFACE with maternal factors (mental health and healthy behavior) and child factors (psychosocial issues). Three predictors together explained 27% of the variance in a significant model, F(3, 61) = 7.09, p < .001. The most important predictor was maternal depressive symptoms.
Initial evaluation of the MyFACE tool suggests sound psychometric properties warranting further development. What This Article Adds: The MyFACE tool provides clinicians and researchers with a way to measure parental perceptions of community inclusion. Maternal depressive symptoms were predictive of MyFACE scores, indicating that to be effective, family participation may require clinicians to address maternal mental health and children's participation restrictions.
父母对社区融入的看法和经验会影响有残疾儿童的家庭和儿童的社区参与，尽管目前还没有测量工具。
描述 My Family's Accessibility and Community Engagement（MyFACE）工具的初步开发情况。
MyFACE 用于衡量父母对养育残疾儿童的家庭的社区可及性和参与度的看法。项目代表了常见的社区活动，以 5 点 Likert 量表进行评分。基于共识的健康测量工具选择标准（COSMIN）指导了内容有效性、构建有效性和内部可靠性测试。
澳大利亚。
77 名残疾儿童的母亲提供了数据，其中 69 名提供了完整的数据。
MyFACE 由 9 个项目组成，具有良好的内容和构建有效性以及良好的内部可靠性（Cronbach's α =.85）。假设检验将 MyFACE 与母亲因素（心理健康和健康行为）和儿童因素（心理社会问题）相关联。三个预测因素共同解释了一个显著模型中的 27%的方差，F(3, 61) = 7.09，p <.001。最重要的预测因素是母亲的抑郁症状。
对 MyFACE 工具的初步评估表明，其具有良好的心理测量学特性，值得进一步开发。本文的重要意义：MyFACE 工具为临床医生和研究人员提供了一种测量父母对社区包容的看法的方法。母亲的抑郁症状是 MyFACE 评分的预测因素，这表明为了提高效果，临床医生可能需要解决母亲的心理健康问题和儿童的参与限制问题。
