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症状负担在亚洲及太平洋岛屿裔和非裔美国男性中较低,他们被纳入综合医疗保健系统中的家庭姑息治疗。

Symptom Burden Is Lower in Asian and Pacific Islander and Black Men Admitted to Home-Based Palliative Care in an Integrated Health Care System.

机构信息

Department of Research and Evaluation, Kaiser Permanente Southern California, Pasadena, California, USA.

Department of Geriatrics, Palliative Medicine, and Continuing Care, West Los Angeles Medical Center, Kaiser Permanente Southern California, Pasadena, California, USA.

出版信息

J Palliat Med. 2022 Oct;25(10):1551-1556. doi: 10.1089/jpm.2021.0528. Epub 2022 Jun 30.

DOI:10.1089/jpm.2021.0528
PMID:35772006
Abstract

Little is known about racial/ethnic differences in symptom severity among patients receiving home-based palliative care (HomePal). To determine whether symptom severity differs between White patients and patients of color receiving HomePal and whether gender moderates the difference. This is a cross-sectional exploratory study. Baseline data were from 2090 patients receiving HomePal in Kaiser Permanente Southern California. Multivariable median regression analyses were carried out across race/ethnicity groups and stratified by gender to assess differences in Edmonton Symptom Assessment System (ESAS) scores at HomePal admission. Asian/Pacific Islander men and Black men had lower ESAS scores compared than White men (-5 [-7.8, -2.2],  = 0.0005 and -5.4 [-8.7, -2.1],  = 0.001, respectively); there were marginal ESAS differences across race/ethnic groups for women. Patients of color reported lower symptom severity than White patients. More research is needed to understand how the intersection of culture and gender affects symptom experience and reporting in patients living with serious illness. Trial Registration: ClinicalTrials.gov: NCT#03694431.

摘要

关于接受家庭姑息治疗(HomePal)的患者中种族/民族之间症状严重程度的差异,知之甚少。本研究旨在确定接受 HomePal 的白种患者和有色人种患者之间的症状严重程度是否存在差异,以及性别是否调节了这种差异。这是一项横断面探索性研究。Kaiser Permanente Southern California 的 2090 名接受 HomePal 的患者的基线数据用于本研究。通过跨种族/民族群体进行多变量中位数回归分析,并按性别分层,以评估 HomePal 入院时埃德蒙顿症状评估系统(ESAS)评分的差异。与白种男性相比,亚洲/太平洋岛民男性和黑人男性的 ESAS 评分较低(-5[-7.8,-2.2],=0.0005 和-5.4[-8.7,-2.1],=0.001);女性之间的 ESAS 评分存在种族/民族差异。有色人种患者报告的症状严重程度低于白种患者。需要进一步研究,以了解文化和性别交叉如何影响患有严重疾病的患者的症状体验和报告。试验注册:ClinicalTrials.gov:NCT#03694431。

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