Department of Obstetrics, Universidade Federal de São Paulo, São Paulo, Brazil.
Department of Health Informatics, Universidade Federal de São Paulo, São Paulo, Brazil.
BMC Med Inform Decis Mak. 2022 Jul 1;22(1):173. doi: 10.1186/s12911-022-01916-4.
Gestational Trophoblastic Disease (GTD) comprises pathological forms of placental trophoblastic tissue proliferation. When benign, they present with hydatidiform moles, and when malignant, they are called Gestational Trophoblastic Neoplasia. With the growth of the practice of digital health, allied to updated therapeutic approaches, the Outpatient Clinic for Gestational Trophoblastic Disease has built a Health Information System (HIS), contributing to the teaching-learning binomial, as well as to self-care.
This is a cross-sectional and blind technological assessment research for developing SIS-Mola (Website for the medical team and the Application "MolaApp" aimed at patients with GTD). We used the Praxis management approach to manage the application creation project. In the tasks involving real-time chat, a WebSocket layer was created and hosted together with the project's web services, which use the Arch Linux operating system. For the evaluations, we provided questionnaires developed based on the System Usability Scale (SUS), to determine the degree of user satisfaction, with objective questions on the Likert scale. We invited 28 participants for the evaluations, among ABDTG specialist physicians, doctors from the DTG Outpatient Clinic team, and the patients. The study was systematized according to the rules of treatment and follow-up in treating the disease.
The tests were conducted from November 2021 to February 2022. The responses obtained on a Likert scale indicated reliability and credibility to the HIS, since the total usability score, measured by the ten questions of the SUS instrument, had a mean of 81.1 (clinicians), 80 (patients) and median of 77.5 for both groups. The sample was characterized according to the variables: age, gender, education, computer knowledge, and profession.
Developing a HIS in the GTD Outpatient Clinic met the objectives regarding the rules of treatment and follow-up of patients. With these digital tools, it is possible to obtain data about the patient's health, sending information through exams performed and appropriate treatments. The connectivity capacity allows agile care, saving time, costs and solving the displacement problem. The TICs generate natural efficiency for the organization in the flow of service and the formation of a database, improving the quality of the assistance.
滋养细胞肿瘤（GTD）包括胎盘滋养层组织异常增生的病理性形式。良性时表现为葡萄胎，恶性时称为妊娠滋养细胞肿瘤。随着数字健康实践的发展，以及更新的治疗方法，妊娠滋养细胞疾病门诊建立了健康信息系统（HIS），有助于教学-学习的结合，以及自我保健。
这是一项针对 SIS-Mola（针对 GTD 患者的医疗团队网站和应用程序"MolaApp"）开发的横断面和盲法技术评估研究。我们使用 Praxis 管理方法来管理应用程序创建项目。在涉及实时聊天的任务中，创建了一个 WebSocket 层，并与项目的 Web 服务一起托管，这些服务使用 Arch Linux 操作系统。对于评估，我们根据系统可用性量表（SUS）开发了问卷，以确定用户满意度程度，使用李克特量表的客观问题。我们邀请了 28 名参与者进行评估，包括 ABDTG 专家医生、DTG 门诊团队医生和患者。该研究根据治疗和随访疾病的规则进行了系统化。
测试于 2021 年 11 月至 2022 年 2 月进行。Likert 量表上的回答表明 HIS 具有可靠性和可信度，因为 SUS 工具的十个问题衡量的总可用性得分，临床医生为 81.1，患者为 80，两组的中位数均为 77.5。样本根据以下变量进行了特征描述：年龄、性别、教育程度、计算机知识和职业。
在妊娠滋养细胞疾病门诊开发 HIS 符合患者治疗和随访的规则。通过这些数字工具，可以获取患者健康数据，通过进行检查和适当治疗发送信息。连接能力允许灵活护理，节省时间、成本并解决搬迁问题。TICs 在服务流程和数据库形成方面为组织带来自然效率，提高了援助质量。
