REHPA, Danish Knowledge Centre of Rehabilitation and Palliative Care, Odense University Hospital, Nyborg, Denmark.
Department of Clinical Research, University of Southern Denmark, Odense, Denmark.
Omega (Westport). 2024 Dec;90(2):805-833. doi: 10.1177/00302228221111933. Epub 2022 Jul 4.
This study explores care experiences while utilising palliative care services of non-western migrant families from the perspectives of patients, family caregivers, and healthcare professionals in Denmark. Twenty-three semi-structured individual and group interviews were conducted among eight patients with a life-threatening disease, 11 family caregivers, and ten healthcare professionals. Thematic analysis revealed three themes: 1) Communication between families and healthcare professionals; 2) Building and lack of trusting relations, and feeling safe, and 3) Access to information and navigating in the healthcare system. Moreover, ''language and culture'' emerged as transaction themes that are not mutually exclusive, however, interconnect across the mentioned three themes. Non-western migrant families can be supported by healthcare professionals' cultural competency training, negotiating on providing services concerning information, patient preferences, family involvement, and palliative care setting. This study findings urge inter-sectoral collaboration to ensure needs-oriented and linguistically and culturally appropriate palliative care services for non-western migrant families in Denmark.
本研究从丹麦的患者、家庭照顾者和医疗保健专业人员的角度探讨了非西方移徙家庭在使用姑息治疗服务时的护理体验。对 8 名患有危及生命疾病的患者、11 名家庭照顾者和 10 名医疗保健专业人员进行了 23 次半结构化的个人和小组访谈。主题分析揭示了三个主题:1)家庭与医疗保健专业人员之间的沟通;2)建立和缺乏信任关系,感到安全;3)获得信息和在医疗保健系统中导航。此外,“语言和文化”作为交易主题出现,它们不是相互排斥的,而是相互关联的贯穿上述三个主题。医疗保健专业人员可以通过文化能力培训、协商提供信息、患者偏好、家庭参与和姑息治疗环境等方面的服务来支持非西方移徙家庭。本研究结果呼吁部门间合作,以确保丹麦为非西方移徙家庭提供以需求为导向、语言和文化适宜的姑息治疗服务。