ONTrac at Peter Mac Victorian Adolescent & Young Adult Cancer Service, Peter MacCallum Cancer Center, Melbourne, Australia.
School of Health Sciences, Faculty of Medicine, Dentistry & Health Sciences, University of Melbourne, Melbourne, Australia.
J Adolesc Young Adult Oncol. 2023 Apr;12(2):133-146. doi: 10.1089/jayao.2022.0033. Epub 2022 Jul 4.
Adolescent and Young Adult (AYA) oncology is an internationally recognized established subspecialty in cancer care. Dedicated programs tailored to local environments endeavor to address unique medical, psychological, cognitive, and social needs that historically, health services have been challenged to meet. In recent years there has been a growing appreciation of the challenges facing AYA with incurable cancer and their parent caregivers. While health care professionals recognize the importance of parents' involvement in the care trajectory, there is less understanding of the services needed for support. This scoping review set out to identify and describe evidence available to better understand the services and approaches required from hospital teams to address the needs of parent caregivers and to identify gaps in knowledge to inform areas for further research. The question guiding this review is: . Using the Arksey and O'Malley scoping review framework, 1009 studies were identified from a broad search of relevant online databases, gray literature, and reference lists of published studies. After removing duplicates and ineligible studies, 492 abstracts were screened. Of these, 421 were ineligible, and 71 articles underwent full-text review. Eight studies were included in the final review. No single study was focused exclusively on parent caregivers of AYA with incurable cancer, demonstrating a paucity of quantitative and qualitative evidence to inform practice and a need for further research in the field.
青少年和青年肿瘤学是癌症护理领域内国际公认的成熟亚专科。专门针对当地环境制定的项目努力解决独特的医疗、心理、认知和社会需求，而历史上，卫生服务机构一直难以满足这些需求。近年来，人们越来越认识到患有绝症的青少年和青年及其父母照顾者所面临的挑战。尽管医疗保健专业人员认识到父母参与护理轨迹的重要性，但对支持所需的服务了解较少。这项范围综述旨在确定和描述现有证据，以更好地了解医院团队为满足父母照顾者的需求而需要提供的服务和方法，并确定知识差距，以为进一步研究指明方向。指导本次综述的问题是：...... 使用 Arksey 和 O'Malley 范围综述框架，从广泛搜索相关在线数据库、灰色文献和已发表研究的参考文献列表中确定了 1009 项研究。在去除重复项和不符合条件的研究后，筛选了 492 份摘要。其中，421 份不符合条件，71 篇文章进行了全文审查。最终综述纳入了 8 项研究。没有一项研究专门关注患有绝症的青少年和青年的父母照顾者，这表明缺乏定量和定性证据来为实践提供信息，并且该领域需要进一步研究。
