Leite Ana Carolina Andrade Biaggi, Rodrigues Ana Laura, Alvarenga Willyane de Andrade, Polita Naiara Barros, Silva-Rodrigues Fernanda Machado, Bolis Letícia Onelli, Meherali Salima, Nascimento Lucila Castanheira
University of São Paulo at Ribeirão Preto College of Nursing, Ribeirao Preto, Brazil.
Centro Universitário Santo Agostinho, Teresina, Brazil.
Child Care Health Dev. 2023 Jan;49(1):181-188. doi: 10.1111/cch.13031. Epub 2022 Jul 12.
The diagnosis of chronic illness in childhood implies frequent hospitalizations and, consequently, the interruption of school attendance. This study aimed to understand the process of school reintegration of children and adolescents with chronic illness from the mothers' perspective.
A qualitative descriptive-exploratory study was conducted with mothers who experienced the process of school reintegration of their child or adolescent, aged between 8 and 17 years old, and diagnosed with chronic illness. The participants were recruited by convenience and interviewed at the paediatric unit of a children's hospital. Data collection was interrupted when the data set was sufficient to answer the research question. The interviews were analysed using inductive thematic analysis. The study was approved by the research ethics committee.
Eleven interviews were conducted, 10 with mothers and one with a grandmother, who played the maternal role. Participants' age ranged between 33 and 58 years old. A theme was developed-"School reintegration under the maternal vigilance"-which encompasses four subthemes: (1) What matters? My child's health comes first; (2) How to keep in touch with the school? (3) Back to the school: Are we ready? (4) Sharing vigilance: reality and expectations. The themes highlighted a cyclical, dynamic, and subjective school reintegration process, constantly permeated by maternal vigilance.
A new understanding about school reintegration was evidenced, from the perspective of mothers of children and adolescents with different chronic illnesses. Mothers and children experience a nonlinear and recurrent process of leaving and returning to school, surrounded by a lack of communication and continuity in school activities. The results of this study may assist health professionals in planning care focused on the needs of the school reintegration of this population.
儿童慢性病的诊断意味着频繁住院，因此会中断学业。本研究旨在从母亲的角度了解慢性病患儿和青少年重新融入学校的过程。
对经历过8至17岁患有慢性病的孩子或青少年重新融入学校过程的母亲进行了一项定性描述性探索性研究。通过便利抽样招募参与者，并在一家儿童医院的儿科病房进行访谈。当数据集足以回答研究问题时，数据收集停止。采用归纳主题分析法对访谈进行分析。该研究获得了研究伦理委员会的批准。
共进行了11次访谈，其中10次访谈对象是母亲，1次访谈对象是扮演母亲角色的祖母。参与者年龄在33至58岁之间。形成了一个主题——“在母亲的监护下重新融入学校”，该主题包含四个子主题：（1）什么最重要？我孩子的健康是第一位的；（2）如何与学校保持联系？（3）回到学校：我们准备好了吗？（4）分担监护责任：现实与期望。这些主题突出了一个循环、动态且主观的重新融入学校的过程，母亲的监护始终贯穿其中。
从患有不同慢性病的儿童和青少年母亲的角度，对重新融入学校有了新的认识。母亲和孩子经历了一个非线性且反复的离开和重返学校的过程，学校活动中缺乏沟通和连续性。本研究结果可能有助于卫生专业人员规划以该群体重新融入学校需求为重点的护理。
