Department of Pediatric Pulmonology, Gazi University Faculty of Medicine, Ankara, Turkey.
Department of Pediatric Pulmonology, University of Health Sciences, Dr. Sami Ulus Maternity and Children's Health and Diseases Training and Research Hospital, Ankara, Turkey.
J Clin Nurs. 2023 Jul;32(13-14):3412-3420. doi: 10.1111/jocn.16450. Epub 2022 Jul 11.
The aim of this study was to evaluate the clinical features of children with tracheostomy and the predictors of psychological status of their primary caregivers in order to determine the associations between the children's clinical course with their caregivers' psychological status.
The caregivers of children with tracheostomy are responsible for providing basic tracheostomy care at home. All these responsibilities may be associated with significant changes in family members' lifestyles, daily routines and family dynamics.
This study is a cross sectional study.
Data of the family's socioeconomic status and clinical status of children with tracheostomy were noted in four paediatric pulmonology centers. The Beck Depression Inventory, Maslach Burnout Inventory, Zarit Caregiver Burden Scale, and Rosenberg Self-esteem Scale were used for psychological measurements of the caregivers. The STROBE checklist was used for this study.
Eighty-five children and their primary caregivers were enrolled in the study. The children's median age was 4.1 years. Thirty-eight of them were dependent on home ventilators. Twenty-one had bacterial colonisation. All children's primary caregivers were their mothers. Beck Depression Inventory scores of mothers of children with colonisation were higher. Number of hospitalizations in previous 6 months was related to mothers' emotional exhaustion and depersonalization scores. Duration of children's hospitalizations in previous 6 months was positively correlated to mothers' emotional exhaustion, depersonalization, and Beck Depression Inventory scores.
Mothers of children with tracheostomy may experience psychological conditions, such as high levels of depression, burnout, burden and low levels of self-esteem. Frequent and long-term hospitalizations of children correlated with mother's depression and burnout. Therefore, primary caregivers should be evaluated and supported psychologically.
Preventing mothers of children with tracheostomy from experiencing psychological conditions such as depression, burnout, burden and low self-esteem can also increase the quality of care for children.
本研究旨在评估气管切开术患儿的临床特征及其主要照顾者的心理状况预测因素，以确定患儿的临床病程与照顾者心理状况之间的关联。
气管切开术患儿的照顾者负责在家中提供基本的气管切开术护理。所有这些责任都可能导致家庭成员的生活方式、日常生活和家庭动态发生重大变化。
这是一项横断面研究。
在四家儿科肺病学中心记录了家庭的社会经济状况和气管切开术患儿的临床状况。使用贝克抑郁量表、马斯拉奇倦怠量表、Zarit 照顾者负担量表和罗森伯格自尊量表对照顾者进行心理测量。本研究使用 STROBE 清单。
研究共纳入 85 名儿童及其主要照顾者。患儿的中位年龄为 4.1 岁。其中 38 人依赖家用呼吸机。21 人有细菌定植。所有患儿的主要照顾者均为其母亲。有细菌定植患儿的母亲贝克抑郁量表评分较高。过去 6 个月的住院次数与母亲的情绪耗竭和去人格化评分相关。过去 6 个月患儿的住院时间与母亲的情绪耗竭、去人格化和贝克抑郁量表评分呈正相关。
气管切开术患儿的母亲可能会经历心理状况，如抑郁、倦怠、负担重和自尊心低。患儿频繁和长期住院与母亲的抑郁和倦怠相关。因此，应评估和支持主要照顾者的心理健康。
预防气管切开术患儿的母亲出现抑郁、倦怠、负担重和自尊心低等心理状况，也可以提高患儿的护理质量。
