Parra Videla Claudia, Sapag Jaime C, Klabunde Rachel, Velasco Paola R, Anríquez Samanta, Aracena Álvarez Marcela, Mascayano Franco, Bravo Paulina, Sena Brena F, Jofré Escalona Ana, Bobbili Sireesha J, Corrigan Patrick W, Bustamante Inés, Poblete Fernando, Alvarado Rubén
Departamento de Salud Pública, Escuela de Medicina, Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.
Departamentos de Salud Pública y Medicina Familiar, Escuela de Medicina, Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile.
Transcult Psychiatry. 2023 Apr;60(2):286-301. doi: 10.1177/13634615221100377. Epub 2022 Jul 12.
Stigma toward people with mental illness and substance use problems is a significant global concern, and prevents people with these conditions from accessing treatment, particularly in primary health care (PHC) settings. Stigma is a cultural phenomenon that is influenced by particular contexts and can differ by country and region. The majority of stigma research focuses on Europe or North America leading to a lack of culturally relevant stigma research instruments for the Latin American context. The present study describes and discusses the methodology for cross-culturally adapting four stigma measurement scales to the Chilean context. The cross-cultural adaptation process included nine phases: (1) preparation; (2) independent translations; (3) synthesis 1 with expert committee; (4) focus groups and interviews with researchers, PHC professionals, and PHC users; (5) synthesis 2 with expert committee; (6) independent back translations; (7) synthesis 3 with expert committee; (8) pilot with PHC professionals; and (9) final revisions. The adaptation process included an array of diverse voices from the PHC context, and met three adaptation objectives defined prior to beginning the process (Understandability, Relevance, and Acceptability and Answer Options). The resulting, culturally adapted questionnaire is being validated and implemented within PHC settings across Chile to provide in-depth insight into stigma among PHC professionals in the country. The authors hope it will be useful for future research on mental illness and substance use stigma in similar settings across Latin America.
对患有精神疾病和物质使用问题者的污名化是一个重大的全球关切问题,它阻碍了患有这些疾病的人获得治疗,尤其是在初级卫生保健机构。污名化是一种文化现象,受特定背景影响,可能因国家和地区而异。大多数污名化研究集中在欧洲或北美,导致缺乏适用于拉丁美洲背景的具有文化相关性的污名化研究工具。本研究描述并讨论了将四个污名测量量表跨文化适应智利背景的方法。跨文化适应过程包括九个阶段:(1) 准备;(2) 独立翻译;(3) 与专家委员会进行第一次综合;(4) 与研究人员、初级卫生保健专业人员和初级卫生保健使用者进行焦点小组讨论和访谈;(5) 与专家委员会进行第二次综合;(6) 独立回译;(7) 与专家委员会进行第三次综合;(8) 在初级卫生保健专业人员中进行预试验;(9) 最终修订。适应过程纳入了初级卫生保健背景下一系列不同的声音,并实现了在过程开始前确定的三个适应目标(可理解性、相关性、可接受性和答案选项)。由此产生的经过文化适应的问卷正在智利各地的初级卫生保健机构中进行验证和实施,以深入了解该国初级卫生保健专业人员中的污名化情况。作者希望它将对拉丁美洲类似环境中未来关于精神疾病和物质使用污名化的研究有用。