482281Vascular and Interventional Professionals, LLC, Hinsdale, IL, USA.
Center for the Advanced Study of Human Paleobiology, George Washington University, Washington, DC, USA.
Phlebology. 2022 Sep;37(8):596-601. doi: 10.1177/02683555221112567. Epub 2022 Jul 13.
Patients with pelvic congestion syndrome (PCS) often report overlapping somatic symptoms and syndromes. The objective of this study was to explore the prevalence of co-existing symptoms and self-reported syndrome diagnoses among women with PCS and to inform future research hypotheses.
A brief online survey was offered to members of a PCS support group website. Responses were assessed for self-reported co-existing symptoms and formal diagnoses, including: chronic fatigue syndrome, fibromyalgia, postural tachycardia syndrome, irritable bowel syndrome, migraines, interstitial cystitis, and temporomandibular joint dysfunction.
Of a total of 6000 members, there were 398 respondents; 232 (59%) had not yet been treated for PCS. Among these, the most prevalent co-existing symptoms were as follows: severe fatigue (72%), dizziness (63%), IBS symptoms (61%), brain fog (33%), migraines (49%), polyuria or dysuria (41%), excessive sweating (31%), TMJ pain (31%), and loose skin or lax joints (18%). These are much higher than reported for the general female population. The most commonly self-reported comorbid syndrome diagnoses for the overall group of 398 were: irritable bowel syndrome (29%), fibromyalgia (13%), spinal nerve problems (18%), interstitial cystitis (10%), postural tachycardia syndrome (9%), hypertension (11%), chronic fatigue syndrome (10%), and Ehlers-Danlos syndrome (6%). Other than with hypertension, these rates are variably higher than in the general population.
Several self-reported co-existing symptoms and syndromes are more prevalent in members of a PCS support group relative to the reported prevalence in the general population. More formal investigation is warranted to evaluate this finding and to investigate potential etiologic links. Ehlers-Danlos Syndrome appears to be common in self identifying PCS women.
患有盆腔淤血综合征（PCS）的患者常报告存在重叠的躯体症状和综合征。本研究的目的是探讨 PCS 女性共存症状和自我报告的综合征诊断的患病率，并为未来的研究假设提供信息。
向 PCS 支持小组网站的成员提供简短的在线调查。评估报告的自我报告共存症状和正式诊断，包括：慢性疲劳综合征、纤维肌痛、体位性心动过速综合征、肠易激综合征、偏头痛、间质性膀胱炎和颞下颌关节功能障碍。
在总共 6000 名成员中，有 398 名受访者；232 名（59%）尚未接受 PCS 治疗。在这些人中，最常见的共存症状如下：严重疲劳（72%）、头晕（63%）、IBS 症状（61%）、脑雾（33%）、偏头痛（49%）、多尿或排尿困难（41%）、过度出汗（31%）、TMJ 疼痛（31%）和皮肤松弛或关节松弛（18%）。这些都远远高于一般女性人群的报告。对于 398 名总体组，最常见的自我报告合并症诊断是：肠易激综合征（29%）、纤维肌痛（13%）、脊神经问题（18%）、间质性膀胱炎（10%）、体位性心动过速综合征（9%）、高血压（11%）、慢性疲劳综合征（10%）和埃勒斯-当洛斯综合征（6%）。除了高血压外，这些比率均高于一般人群。
与一般人群的报告患病率相比，PCS 支持小组的成员中存在几种自我报告的共存症状和综合征更为普遍。需要更正式的调查来评估这一发现，并研究潜在的病因联系。埃勒斯-当洛斯综合征在自我认同的 PCS 女性中似乎很常见。
