Malo Marie-Françoise, Affdal Aliya, Blum Dan, Ballesteros Fabian, Beaubien-Souligny William, Caron Marie-Line, Nadeau-Fredette Annie-Claire, Vasilevsky Murray, Rios Norka, Fortin Marie-Chantal, Suri Rita S
Bioethics Program, École de santé publique de l'Université de Montréal, Montreal, Canada.
Division of nephrology, Jewish General Hospital, Montreal, Canada.
Kidney360. 2022 Apr 25;3(6):1057-1064. doi: 10.34067/KID.0000182022. eCollection 2022 Jun 30.
Hemodialysis patients have faced unique challenges during the COVID-19 pandemic. They face high risk of death if infected and have unavoidable exposure to others when they come to hospital three times weekly for their life-saving treatments. The objective of this study was to gain a better understanding of the scope and magnitude of the effects of the pandemic on the lived experience of patients receiving in-center hemodialysis.
We conducted semi-structured interviews with 22 patients who were undergoing dialysis treatments in five hemodialysis centers in Montreal from November 2020 to May 2021. Interviews were transcribed and then analyzed using thematic content analysis.
Most participants reported no negative effects of the COVID-19 pandemic on their hemodialysis care. Several patients had negative feelings related to forced changes in their dialysis schedules, and this was especially pronounced for indigenous patients in a shared living situation. Some patients were concerned about contracting COVID-19, especially during public transportation, whereas others expressed confidence that the physical distancing and screening measures implemented at the hospital would protect them and their loved ones. Some participants reported that masks negatively affected their interactions with health care workers, and for many others, the pandemic was associated with feelings of loneliness. Finally, some respondents reported some positive effects of the pandemic, including use of telemedicine and creating a sense of solidarity.
Patients undergoing hemodialysis reported no negative effects on their medical care but faced significant disruptions in their routines and social interactions due to the COVID-19 pandemic. Nevertheless, they showed great resilience in their ability to adapt to the new reality of their hemodialysis treatments. We also show that studies focused on understanding the lived experiences of indigenous patients and patients from different ethnic backgrounds are needed in order reduce inequities in care during public health emergencies.
在新冠疫情期间，血液透析患者面临着独特的挑战。如果感染，他们面临着很高的死亡风险，而且当他们每周三次前往医院接受维持生命的治疗时，不可避免地会接触到其他人。本研究的目的是更好地了解疫情对接受中心血液透析患者生活体验的影响范围和程度。
2020年11月至2021年5月，我们对在蒙特利尔五个血液透析中心接受透析治疗的22名患者进行了半结构化访谈。访谈内容被转录，然后使用主题内容分析法进行分析。
大多数参与者报告称，新冠疫情对他们的血液透析护理没有负面影响。一些患者对透析时间表的被迫改变有负面情绪，对于处于共同生活环境中的原住民患者来说，这种情况尤为明显。一些患者担心感染新冠病毒，尤其是在乘坐公共交通工具期间，而另一些患者则表示相信医院实施的物理距离和筛查措施会保护他们及其亲人。一些参与者报告称，口罩对他们与医护人员的互动产生了负面影响，对许多其他人来说，疫情与孤独感有关。最后，一些受访者报告了疫情的一些积极影响，包括远程医疗的使用和产生了团结感。
接受血液透析的患者报告称，他们的医疗护理没有受到负面影响，但由于新冠疫情，他们的日常生活和社交互动受到了重大干扰。尽管如此，他们在适应血液透析治疗新现实方面表现出了很强的适应能力。我们还表明，需要开展侧重于了解原住民患者和不同种族背景患者生活体验的研究，以减少公共卫生紧急事件期间护理方面的不平等现象。
