Casey Anne-Marie, Nolan Maeve, Nixon Elizabeth
School of Psychology, 8809Trinity College Dublin, Dublin, Ireland.
Psychology Department, 82903National Rehabilitation Hospital, Dublin, Ireland.
Qual Health Res. 2022 Sep;32(11):1657-1671. doi: 10.1177/10497323221115584. Epub 2022 Jul 18.
Little research to date has explored the experiences of parenting among mothers with Spinal Cord Injury (SCI). The aim of the study was to explore the lived experiences of mothers with SCI. Semi-structured interviews were conducted with eight mothers and an interpretive phenomenological analysis was carried out. Two super-ordinate themes were identified. The first theme, entitled: 'A sit-down mummy: The visibility of differences as a mother with SCI' highlighted how mothers faced challenges when undertaking practical parenting tasks, thus making them feel less than their non-injured peers, and how they navigated the visible and physical intrusion of the wheelchairs in their relationships with their children. The second theme, entitled: 'What kind of mother? Being a good enough parent' reflected mothers' heightened sense of guilt with respect to unmet expectations of the self as mother, and the contrasting positive experiences of availing of support and finding new ways to connect with their children. Clinical implications, methodological considerations and future directions are discussed.
迄今为止，几乎没有研究探讨过脊髓损伤（SCI）母亲的育儿经历。本研究的目的是探究脊髓损伤母亲的生活经历。对八位母亲进行了半结构化访谈，并开展了诠释现象学分析。确定了两个上位主题。第一个主题名为：“坐着的妈妈：作为脊髓损伤母亲，差异的可见性”，强调了母亲在承担实际育儿任务时面临的挑战，这使她们感觉不如未受伤的同龄人，以及她们如何应对轮椅在与孩子关系中的明显和实际干扰。第二个主题名为：“哪种母亲？做个足够好的父母”，反映了母亲因未达到作为母亲的自我期望而产生的强烈内疚感，以及利用支持并找到与孩子建立联系新方式的积极体验。文中还讨论了临床意义、方法学考量和未来方向。
