Gao Xiang, Wang Kaipeng, Sun Fei, De Fries Carson M, Xu Fang, Huang Peijun, Feng Yali
School of Sociology, Huazhong University of Science and Technology, Wuhan, China.
Graduate School of Social Work, University of Denver, Denver, Colorado, USA.
J Gerontol Soc Work. 2023 Apr;66(3):368-380. doi: 10.1080/01634372.2022.2103865. Epub 2022 Jul 19.
The aim of this study is to examine perceived quality of life in Chinese older adults living with cognitive impairment and explore its associations with caregivers' characteristics. Questionnaires were administered in person to 271 caregiver-care recipient dyads from urban communities in mainland China in 2019. We used the 40-item Alzheimer's Disease-related Quality of Life tool and asked caregiver respondents to indicate care recipients' life conditions. The questionnaire asked caregivers about their sociodemographic characteristics, levels of informal social support, caregiver burden, and depressive symptoms. Caregivers' higher levels of caregiver burden (β = > -0.19, < .01) and depressive symptoms (β = > -0.19, < .01) amongst caregivers were significantly associated with lower quality of life among care recipients. Informal support from relatives and friends to caregivers did not significantly affect quality of life of care recipients. The results suggested that reducing caregivers' burden and depressive symptoms are essential to promote quality of life of care recipients. Formal support from health professionals, service organizations, and communities are urgently called to promote the wellbeing of Chinese families affected by cognitive impairment.
本研究旨在调查中国认知障碍老年人的生活质量感知情况,并探讨其与照料者特征之间的关联。2019年,我们对来自中国大陆城市社区的271对照料者-受照料者进行了问卷调查。我们使用了40项与阿尔茨海默病相关的生活质量工具,并要求照料者受访者指出受照料者的生活状况。问卷询问了照料者的社会人口学特征、非正式社会支持水平、照料负担和抑郁症状。照料者较高的照料负担水平(β = > -0.19,< .01)和抑郁症状(β = > -0.19,< .01)与受照料者较低的生活质量显著相关。亲戚和朋友给予照料者的非正式支持对受照料者的生活质量没有显著影响。结果表明,减轻照料者的负担和抑郁症状对于提高受照料者的生活质量至关重要。迫切需要卫生专业人员、服务组织和社区提供正式支持,以促进受认知障碍影响的中国家庭的福祉。