School of Nursing, Nanjing University of Chinese Medicine, Nanjing, China.
Front Public Health. 2023 Jun 5;11:1170594. doi: 10.3389/fpubh.2023.1170594. eCollection 2023.
The aim of this study was to analyze the status quo and associated factors of care recipients' perceptions of caregivers' willingness to provide care among disabled older adults in China. Thus, this study contributes to our understanding of vulnerable older populations who are at a high risk of receiving support from informal caregivers who are unable or unwilling to take the caregiver role.
We analyzed the cross-sectional data of 3,539 disabled older adults who received informal care at home from the seventh wave of the 2018 Chinese Longitudinal Healthy Longevity Survey (CLHLS). Multiple logistic regression models were used to examine the variables associated with the respondents' perceived caregivers' willingness to care from five aspects: respondents' sociodemographic attributes, health-related data, family endowment, access to health care services and community-based long-term care services (CBLTCS).
This study found that the majority of disabled older adults (90.9%) had a positive attitude toward their caregivers' willingness to care and the care they received; however, 7.0% of the adults were concerned about their caregivers' ability to handle the care. Moreover, there was a small number of disabled older people (2.1%) who felt that their caregivers were reluctant to care or lacked patience. The results from the multiple logistic regression showed that disabled older adults with socioeconomic disadvantages (living in rural areas, being poor and with no children who frequently visited) or high demand (with severe disabilities or cognitive impairment) were more likely to consider that their caregivers needed respite care. Those adults with anxiety symptoms, a lower amount of care time, poor self-rated financial status and poor accessibility to health care services were more likely to report that their caregivers were reluctant to administer care.
This study found that living in rural areas, being poor, with no children who frequently visited, severe disabilities or CI were positively associated the care recipients' perception that caregivers needed respite care. While anxiety symptoms, a lower amount of care time, poor self-rated financial status and poor accessibility to health care services were significantly associated with care recipients' perception of caregivers' reluctance to care. Our findings highlight the awareness of monitoring informal carers' willingness to care or capability to enact caring tasks.
本研究旨在分析中国残疾老年人对照顾者照顾意愿的认知现状及其影响因素，以期了解那些面临来自无法或不愿承担照顾角色的非正式照顾者支持的高风险脆弱老年人群体。
我们分析了来自 2018 年中国老年人健康长寿跟踪调查（CLHLS）第七波的 3539 名接受居家非正式照顾的残疾老年人的横断面数据。采用多因素 logistic 回归模型，从受访者的社会人口统计学特征、健康相关数据、家庭经济状况、获得医疗保健服务和社区长期护理服务（CBLTCS）五个方面，分析了与受访者感知照顾者照顾意愿相关的变量。
本研究发现，大多数残疾老年人（90.9%）对照顾者的照顾意愿和所接受的照顾持积极态度，但也有 7.0%的老年人对照顾者的照顾能力表示担忧。此外，还有一小部分残疾老年人（2.1%）认为照顾者不愿意照顾或缺乏耐心。多因素 logistic 回归结果显示，社会经济地位较低的残疾老年人（居住在农村地区、贫困和子女探望不频繁）或需求较高的残疾老年人（严重残疾或认知障碍）更有可能认为照顾者需要喘息照顾。那些有焦虑症状、照顾时间较少、自我报告经济状况较差和医疗保健服务可及性较差的老年人更有可能报告其照顾者不愿意提供照顾。
本研究发现，居住在农村地区、贫困、没有经常探望的子女、严重残疾或认知障碍与照顾者需要喘息照顾的认知呈正相关。而焦虑症状、较少的照顾时间、较差的自我经济状况和较差的医疗保健服务可及性与照顾者不愿照顾的认知显著相关。我们的研究结果强调了监测非正式照顾者照顾意愿或履行照顾任务能力的重要性。
