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自闭症谱系障碍患者循证实践的评估参数:群组和单受试者设计研究的叙述性综述

Evaluation parameters for evidence-based practices for people with autism spectrum disorder: a narrative review of group and single-subject design studies.

作者信息

da Hora Cássia Leal, Sella Ana Carolina

机构信息

Paradigma, Behavioral Science and Technology Center, Rua Bartira, 1294, Perdizes, São Paulo, SP, CEP: 05011-001, Brazil.

Aprendizagem em Pauta, Rua Olindina Campos Teixeira, 172/601, Maceió, Alagoas, CEP: 57036-690, Brazil.

出版信息

Psicol Reflex Crit. 2022 Jul 20;35(1):23. doi: 10.1186/s41155-022-00213-3.

DOI:10.1186/s41155-022-00213-3
PMID:35857210
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9300806/
Abstract

Recommendations for using evidence-based practices have become increasingly common in services for individuals diagnosed with autistic spectrum disorder (ASD). The aim of this study was to conduct a narrative literature review to identify differences and similarities in evidence-evaluation criteria for group and single-subject designs that empirically support interventions for people with ASD. Data sources used in this analysis were reports and articles elaborated by different clearinghouses (i.e., National Autism Center, National Professional Development Center, and the National Clearinghouse on Autism Evidence and Practice). The criteria for evaluating evidence, as defined by these documents, contained specific components or quality indicators for each type of study design. The different criteria for evaluating evidence and for classifying the interventions (once evidence was evaluated) were identified and described. This manuscript discusses the need for (a) expanding the analysis beyond the evidence identified by different researchers and organizations such as the clearinghouses, (b) proposing interventions that are based not only on scientific evidence but also on social validity - which is directed by client idiosyncrasies, and (c) attention to the fact that EBPs should not be seen as static information regarding interventions with empirical support: evidence-based practices are the result of constant analysis of the intervention implementation data added to professional training and client values and context. Some additional issues and the study limitations are also presented.

摘要

在为被诊断患有自闭症谱系障碍(ASD)的个体提供的服务中,使用循证实践的建议已变得越来越普遍。本研究的目的是进行一项叙述性文献综述,以确定在实证支持针对ASD患者干预措施的组间设计和单被试设计的证据评估标准中的异同。本分析中使用的数据源是由不同信息中心(即国家自闭症中心、国家专业发展中心以及国家自闭症证据与实践信息中心)编撰的报告和文章。这些文件所定义的证据评估标准,针对每种研究设计类型都包含特定的组成部分或质量指标。确定并描述了评估证据以及对干预措施进行分类(一旦证据得到评估)的不同标准。本手稿讨论了以下需求:(a)将分析范围扩大到不同研究人员和组织(如信息中心)所确定的证据之外;(b)提出不仅基于科学证据,而且基于社会效度(由服务对象的特质所决定)的干预措施;(c)注意循证实践不应被视为关于具有实证支持的干预措施的静态信息:循证实践是对干预实施数据不断分析的结果,这些数据还融入了专业培训以及服务对象的价值观和背景。还介绍了一些其他问题和研究局限性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6e58/9300806/774f905bacb7/41155_2022_213_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6e58/9300806/774f905bacb7/41155_2022_213_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6e58/9300806/774f905bacb7/41155_2022_213_Fig1_HTML.jpg

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本文引用的文献

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Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016.2016 年,美国 11 个监测点自闭症和发育障碍监测网络对 8 岁儿童自闭症谱系障碍流行率的调查。
MMWR Surveill Summ. 2020 Mar 27;69(4):1-12. doi: 10.15585/mmwr.ss6904a1.
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BMC Health Serv Res. 2020 Feb 3;20(1):81. doi: 10.1186/s12913-020-4935-y.
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Guidance or Compliance: What Makes an Ethical Behavior Analyst?
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Maintaining Professional Relationships in an Interdisciplinary Setting: Strategies for Navigating Nonbehavioral Treatment Recommendations for Individuals with Autism.在跨学科环境中维持专业关系:为自闭症个体制定非行为治疗建议的应对策略
Behav Anal Pract. 2015 Feb 10;8(1):70-78. doi: 10.1007/s40617-015-0042-7. eCollection 2015 May.
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New evidence pyramid.新的证据金字塔
Evid Based Med. 2016 Aug;21(4):125-7. doi: 10.1136/ebmed-2016-110401. Epub 2016 Jun 23.
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