Circ Cardiovasc Qual Outcomes. 2022 Aug;15(8):e000110. doi: 10.1161/HCQ.0000000000000110. Epub 2022 Jul 14.
Although resilience and high quality of life are demonstrated by many individuals with congenital heart disease, a range of significant psychological challenges exists across the life span for this growing patient population. Psychiatric disorders represent the most common comorbidity among people with congenital heart disease. Clinicians are becoming increasingly aware of the magnitude of this problem and its interplay with patients' physical health, and many seek guidance and resources to improve emotional, behavioral' and social outcomes. This American Heart Association scientific statement summarizes the psychological outcomes of patients with congenital heart disease across the life span and reviews age-appropriate mental health interventions, including psychotherapy and pharmacotherapy. Data from studies on psychotherapeutic, educational' and pharmacological interventions for this population are scarce but promising. Models for the integration of mental health professionals within both pediatric and adult congenital heart disease care teams exist and have shown benefit. Despite strong advocacy by patients, families' and health care professionals, however, initiatives have been slow to move forward in the clinical setting. It is the goal of this scientific statement to serve as a catalyst to spur efforts for large-scale research studies examining psychological experiences, outcomes, and interventions tailored to this population and for integrating mental health professionals within congenital heart disease interdisciplinary teams to implement a care model that offers patients the best possible quality of life.
尽管许多患有先天性心脏病的个体表现出韧性和较高的生活质量，但在整个生命周期中，这一不断增长的患者群体仍存在一系列严重的心理挑战。精神障碍是先天性心脏病患者最常见的合并症。临床医生越来越意识到这个问题的严重性及其与患者身体健康的相互作用，许多人寻求指导和资源，以改善情绪、行为和社会结果。这份美国心脏协会科学声明总结了先天性心脏病患者在整个生命周期中的心理结果，并回顾了适合年龄的心理健康干预措施，包括心理治疗和药物治疗。针对该人群的心理治疗、教育和药物干预研究的数据很少，但很有前景。在儿科和成人先天性心脏病护理团队中整合心理健康专业人员的模式已经存在，并已显示出益处。然而，尽管患者、家庭和医疗保健专业人员大力倡导，但在临床环境中，这些倡议进展缓慢。本科学声明的目标是成为催化剂，激发人们努力进行大规模研究，以研究针对这一人群的心理体验、结果和干预措施，并整合先天性心脏病多学科团队中的心理健康专业人员，以实施为患者提供最佳生活质量的护理模式。
