Huang Yue, Liu Fuze, Gao Dejin, Wang Hai
Department of Orthopaedic Surgery, Peking Union Medical College Hospital, Peking Union Medical College and Chinese Academy of Medical Sciences, Beijing, China.
Department of Plastic and Reconstructive Surgery, Beijing Plastic Surgery Hospital, Peking Union Medical College and Chinese Academy of Medical Sciences, Beijing, China.
Front Pediatr. 2022 Jul 6;10:880360. doi: 10.3389/fped.2022.880360. eCollection 2022.
Adolescent idiopathic scoliosis (AIS) is a common chronic disease in youths, presenting with spinal deformity. Previous studies reported that the family functioning of family members would be affected after a child is diagnosed with a chronic health condition. However, no previous study focused on the relationship between AIS and family function. This study is a cross-sectional study that enrolled 54 AIS families and 92 ordinary families and evaluated their family function in 7 domains using the McMaster family assessment device (FAD). The results showed that the AIS family got a lower score than a healthy family in all 7 subscales except for the problem-solving subscale. There was no significant difference between the patients with AIS (1.90 ± 0.42∼2.23 ± 0.32) and their parents (1.92 ± 0.35∼2.21 ± 0.29) in all seven subscales ( ≥ 0.05). The scores of the parents were moderately/strongly correlated with those of the patients with AIS in all seven subscales (γ = 0.456∼0.696, < 0.05). Approximately, 20.4-87% of the families experienced unhealthy family functioning, with affective involvement (57.4%), and behavior control (87%) representing the unhealthiest subscales with the mean scores above the cutoff. It can be concluded that the AIS family performed better than a healthy family in family functions.
青少年特发性脊柱侧凸（AIS）是青少年中一种常见的慢性疾病，表现为脊柱畸形。先前的研究报道，孩子被诊断患有慢性健康状况后，其家庭成员的家庭功能会受到影响。然而，以前没有研究关注AIS与家庭功能之间的关系。本研究是一项横断面研究，招募了54个AIS家庭和92个普通家庭，并使用麦克马斯特家庭评估工具（FAD）在7个领域评估了他们的家庭功能。结果显示，除解决问题分量表外，AIS家庭在所有7个分量表上的得分均低于健康家庭。在所有7个分量表中，AIS患者（1.90±0.42～2.23±0.32）与其父母（1.92±0.35～2.21±0.29）之间无显著差异（P≥0.05）。在所有7个分量表中，父母的得分与AIS患者的得分呈中度/高度相关（γ=0.456～0.696，P<0.05）。大约20.4%～87%的家庭存在不健康的家庭功能，情感卷入（57.4%）和行为控制（87%）是最不健康的分量表，其平均分高于临界值。可以得出结论，AIS家庭在家庭功能方面的表现优于健康家庭。
