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与阿帕萨罗克族开展慢性病自我管理干预的招募、留存及干预依从性情况。

Recruitment, retention, and intervention adherence for a chronic illness self-management intervention with the Apsáalooke Nation.

作者信息

Fimbel Laurel, Pitts Mikayla, Schure Mark, McCormick Alma Knows His Gun, Held Suzanne

机构信息

Montana State University, Department of Health and Human Development, Bozeman, Montana.

Messengers for Health, Crow Agency, Montana.

出版信息

Public Health Rev (Minneap). 2022 Jun 17;5(1).

PMID:35875172
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9302479/
Abstract

Recruitment, retention, and adherence within health intervention research have been understudied in Indigenous communities, where well-known health disparities exist. The purpose of this paper is to describe planned versus actual recruitment, retention, and adherence strategies and the evaluation of retention and adherence strategies for a community-based research study of a Chronic Illness (CI) self-management intervention within an Indigenous community. A Community-Based Participatory Research (CBPR) approach was used to develop and implement Báa nnilah, a culturally consonant educational intervention to improve CI self-management. Reasons for participant adherence and retention were tracked and recorded over time. A post-intervention survey assessed barriers and facilitators to intervention adherence. Overall, recruitment, retention, and adherence methods were successful in enrolling and maintaining participation. Using a CBPR approach and culturally consonant strategies may assist in meeting recruitment goals and improving sustained participation of community members, thus impacting health disparities among Indigenous communities.

摘要

在存在显著健康差距的原住民社区,健康干预研究中的招募、留存和依从性问题一直未得到充分研究。本文旨在描述一项原住民社区慢性病自我管理干预的社区研究中计划与实际的招募、留存和依从性策略,以及对留存和依从性策略的评估。采用基于社区的参与性研究(CBPR)方法来开发和实施Báa nnilah,这是一种符合文化特点的教育干预措施,以改善慢性病自我管理。随着时间的推移,对参与者依从和留存的原因进行跟踪和记录。干预后调查评估了干预依从性的障碍和促进因素。总体而言,招募、留存和依从性方法在招募和维持参与方面取得了成功。采用CBPR方法和符合文化特点的策略可能有助于实现招募目标,并提高社区成员的持续参与度,从而影响原住民社区的健康差距。

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引用本文的文献

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Improving Chronic Illness Self-Management with the Apsáalooke Nation: The Báa nnilah Project, a cluster randomized trial protocol.运用阿萨巴斯卡民族方法改善慢性病自我管理:Báa nnilah 项目,一项整群随机试验方案。
Contemp Clin Trials. 2022 Aug;119:106835. doi: 10.1016/j.cct.2022.106835. Epub 2022 Jun 18.

本文引用的文献

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The representation of Indigenous peoples in chronic disease clinical trials in Australia, Canada, New Zealand, and the United States.澳大利亚、加拿大、新西兰和美国的慢性疾病临床试验中对原住民的代表性。
Clin Trials. 2022 Feb;19(1):22-32. doi: 10.1177/17407745211069153. Epub 2022 Jan 6.
2
Daasachchuchik: A Trauma-Informed Approach to Developing a Chronic Illness Self-Management Program for the Apsáalooke People.达萨楚奇克:一个以创伤知情为基础的方法,为阿萨帕斯卡尔人开发慢性疾病自我管理项目。
J Health Care Poor Underserved. 2020;31(2):992-1006. doi: 10.1353/hpu.2020.0073.
3
"Being Grounded in the Ancestors and Looking Forward..."-Blending Culturally Competent Research with Indigenous Leadership Styles.“扎根于祖先,展望未来……”-将文化胜任的研究与本土领导风格相结合。
Prev Sci. 2020 Jan;21(Suppl 1):98-104. doi: 10.1007/s11121-019-01063-9.
4
Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program.与阿帕萨罗克族共同改善慢性病自我管理:“Báa nnilah计划”的制定。
Soc Sci Med. 2019 Dec;242:112583. doi: 10.1016/j.socscimed.2019.112583. Epub 2019 Oct 3.
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A conceptual model for establishing collaborative partnerships between universities and Native American communities.建立大学与美国原住民社区之间合作关系的概念模型。
Nurse Res. 2019 Mar 18;27(1):27-32. doi: 10.7748/nr.2019.e1613. Epub 2019 Mar 7.
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Health-Related Participatory Research in American Indian and Alaska Native Communities: A Scoping Review.美国印第安人和阿拉斯加原住民社区的健康相关参与式研究:范围综述。
Int J Environ Res Public Health. 2019 Aug 18;16(16):2969. doi: 10.3390/ijerph16162969.
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Follow-up Study Methods for a Longitudinal Cohort of Alaska Native and American Indian People Living within Urban South Central Alaska: The EARTH Study.阿拉斯加原住民和美洲印第安人生活在城市南中阿拉斯加的纵向队列的随访研究方法:EARTH 研究。
J Community Health. 2019 Oct;44(5):903-911. doi: 10.1007/s10900-019-00630-z.
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A framework for enhancing ethical genomic research with Indigenous communities.促进与原住民社区合作的基因组学研究的伦理框架。
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