Arizona State University, Tempe, AZ, USA.
J Music Ther. 2022 Sep 19;59(3):307-339. doi: 10.1093/jmt/thac008.
Parent coaching of music interventions is emerging as a viable model for families with young autistic children, yet recruitment difficulties have been apparent in previous studies. Understanding parent perspectives of early intervention services is critical to ensure that interventions are acceptable, feasible, and effective for all family members. In order to understand possible parental resistance to this type of parent education, we explored perspectives regarding music therapy, research, and parent coaching in parents of young autistic children. Fourteen parents attended virtual focus groups to discuss their experiences. We used a descriptive phenomenological approach to uncover the essence of their experience. Our findings indicate that, contrary to our preconceptions, participants did not show negative dispositions towards music therapy, research, or parent coaching. Instead, most participants had very little or no knowledge of music therapy services. They had limited experience with research in general, and only two participants had experienced music therapy directly. Several participants had varying amounts of experience with parent participation or parent coaching outside of music therapy and shared positive experiences with it. Parents seemed willing and eager to learn music strategies to support their children and saw value in the use of music for their child's development. First-contact providers (i.e., early interventionists and diagnosticians) and social media seem influential in parents' decision-making as they navigate early intervention services soon after diagnosis. Music therapy organizations are encouraged to design targeted efforts to make information on music therapy available through these sources.
家长对音乐干预的指导作为一种针对有年幼自闭症儿童的家庭的可行模式正在兴起,但在之前的研究中,招募困难已经很明显。了解家长对早期干预服务的看法对于确保干预措施对所有家庭成员都是可接受、可行和有效的至关重要。为了了解家长对这种类型的家长教育可能存在的抵制,我们探讨了年轻自闭症儿童家长对音乐治疗、研究和家长指导的看法。14 位家长参加了虚拟焦点小组讨论他们的经验。我们使用描述现象学方法来揭示他们经验的本质。我们的研究结果表明,与我们的先入之见相反,参与者对音乐治疗、研究或家长指导并没有表现出消极的态度。相反,大多数参与者对音乐治疗服务知之甚少或一无所知。他们对一般的研究经验有限,只有两名参与者直接体验过音乐治疗。几位参与者在音乐治疗之外的家长参与或家长指导方面有不同程度的经验,并分享了积极的经验。家长们似乎愿意并渴望学习支持孩子的音乐策略,并认为音乐对孩子的发展有价值。首次接触的提供者(即早期干预者和诊断师)和社交媒体似乎在父母决策中具有影响力,因为他们在诊断后不久就开始探索早期干预服务。音乐治疗组织被鼓励通过这些来源设计有针对性的努力,使有关音乐治疗的信息可供使用。